Hello,
I'm just wondering what sort of difficulties you've had in getting people around you to appreciate what we go through even just 20%.
20 months ago i had a few tcs that left me unconscious for 5 days and 13 years of amnesia. Since then I have only had a few tc the last one 6 weeks ago when I woke up in the hospital tied to a bed after 3 days. I have a neurologist and have been working on meds(hate keppra the most). Due to the seizures I have 2 cracked vertebrae herniated disc in my neck and osteoporosis. Due to the tc and side effects I haven't been able to work and have accepted help from my inlaws and my wife has kept working, I used to be successful financially and independent. Although this week I was ask when I will be back to work and not needing charity. My father in law said he knows people sicker than me and they are working and some of them are diabetic. Just to let you know money's not the issue between my sisters who won't acknowledge me and my wifes family there is approx 10mil.
Why won't anyone believe or even try to care I lost 13 years I dont remember my profession, kids birthdays any trips with them, cars i've had. Evidently I look ok sound normal although sometime I seem drunk my wife has been told. The memory is because I'm getting older and we all forget things(im 47) if you focus you will be able to remember things. I worry too much that is why my short term memory is gone.
I know im ranting and not making sense but Im so mad. I asked my fatherinlaw how he liked the lunch we had last week(there was no lunch) I told him we did go he thought I was trying to make a fool of him when i told him that is what its like. I cant work because I dont remember what i learned to get me where i was. I'm sore because of my back and arthritis.
But i'm sounding better and dont worry we all forget things.
Im not sure what im looking for but im fed up.
I'm just wondering what sort of difficulties you've had in getting people around you to appreciate what we go through even just 20%.
20 months ago i had a few tcs that left me unconscious for 5 days and 13 years of amnesia. Since then I have only had a few tc the last one 6 weeks ago when I woke up in the hospital tied to a bed after 3 days. I have a neurologist and have been working on meds(hate keppra the most). Due to the seizures I have 2 cracked vertebrae herniated disc in my neck and osteoporosis. Due to the tc and side effects I haven't been able to work and have accepted help from my inlaws and my wife has kept working, I used to be successful financially and independent. Although this week I was ask when I will be back to work and not needing charity. My father in law said he knows people sicker than me and they are working and some of them are diabetic. Just to let you know money's not the issue between my sisters who won't acknowledge me and my wifes family there is approx 10mil.
Why won't anyone believe or even try to care I lost 13 years I dont remember my profession, kids birthdays any trips with them, cars i've had. Evidently I look ok sound normal although sometime I seem drunk my wife has been told. The memory is because I'm getting older and we all forget things(im 47) if you focus you will be able to remember things. I worry too much that is why my short term memory is gone.
I know im ranting and not making sense but Im so mad. I asked my fatherinlaw how he liked the lunch we had last week(there was no lunch) I told him we did go he thought I was trying to make a fool of him when i told him that is what its like. I cant work because I dont remember what i learned to get me where i was. I'm sore because of my back and arthritis.
But i'm sounding better and dont worry we all forget things.
Im not sure what im looking for but im fed up.