Jackson-Lewis17
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Hey all first non intro forum post for me but I felt I needed to ask others.
While I am a person who knows any surgery carries risk and so a degree even more risk with neurosurgery. I also am a person who is hard to find any medication for anything to work for..... I felt like I have been cold shouldered by doctors for even inquiring about finding out If I am a candidate for a temporal lobectamy...... I first asked about surgery a few months after my first seizure, But was immediately told that surgery only becomes an option after two pharmaceuticals have failed to control seizures.... a year passed two pharma drugs failed to control the seizures for what doctors called a "minor" form of epilepsy...... so again I inquired about the potential for at least sending my info from EEG and MRI scans to find out if I am a candidate for surgery. that time the doctor went straight back to trying to push other kinds of even more expensive medication (that i cannot afford as i have no coverage) on me.
so I left the neurologist and went to get the referral to inquire about surgery from my family doctor...... she seemed confused and not wanting to even give me the referral for inquiry..... even acting like I am crazy to want to see surgery as an option...... and they refused to send it even to any other out of province doctors when they did send out the referral......... I just feel like this is odd for doctors to say: well we cant do it till this happens, that thing happens then get treated like I am nuts for wanting to try other potential paths........ that while expensive will potentially cost me less in medications over a lifetime for the cost of one surgery...... so felt I needed to ask if any others were treated like this for simply asking if surgery was an option for them.
While I am a person who knows any surgery carries risk and so a degree even more risk with neurosurgery. I also am a person who is hard to find any medication for anything to work for..... I felt like I have been cold shouldered by doctors for even inquiring about finding out If I am a candidate for a temporal lobectamy...... I first asked about surgery a few months after my first seizure, But was immediately told that surgery only becomes an option after two pharmaceuticals have failed to control seizures.... a year passed two pharma drugs failed to control the seizures for what doctors called a "minor" form of epilepsy...... so again I inquired about the potential for at least sending my info from EEG and MRI scans to find out if I am a candidate for surgery. that time the doctor went straight back to trying to push other kinds of even more expensive medication (that i cannot afford as i have no coverage) on me.
so I left the neurologist and went to get the referral to inquire about surgery from my family doctor...... she seemed confused and not wanting to even give me the referral for inquiry..... even acting like I am crazy to want to see surgery as an option...... and they refused to send it even to any other out of province doctors when they did send out the referral......... I just feel like this is odd for doctors to say: well we cant do it till this happens, that thing happens then get treated like I am nuts for wanting to try other potential paths........ that while expensive will potentially cost me less in medications over a lifetime for the cost of one surgery...... so felt I needed to ask if any others were treated like this for simply asking if surgery was an option for them.