seizuregirl
Stalwart
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My Dr thinks that an RNS(Responsive neurostimulation) might work for me. Has anyone had one, or know of anyone who has?
I'm just wondering, I've looked at epilepsy.com's info on it, and it seems to be a bit complicated, especially since I don't have aura's, and I'm never aware of even having had one unless there's a mess, or a family member's witnessed it.
I'm also around toddler's mon-fri while their parent's are working, and my autistic twin who i'm not sure if she would be able to understand how to use the magnet correctly if she saw me having a seizure. I have an older nephew dropped off after school, but he's 11 yrs old. I can't really rely on him. I'm sure he'll understand what to do, but to get him to do it would be impossible.
It sounded like a good idea to me when my dr talked to us about it. But then he had talked about my having aura's when explaining how to use it, and I had to interrupt him to remind him that I didn't have aura's. But he still pushed it.
I'm just wondering, I've looked at epilepsy.com's info on it, and it seems to be a bit complicated, especially since I don't have aura's, and I'm never aware of even having had one unless there's a mess, or a family member's witnessed it.
I'm also around toddler's mon-fri while their parent's are working, and my autistic twin who i'm not sure if she would be able to understand how to use the magnet correctly if she saw me having a seizure. I have an older nephew dropped off after school, but he's 11 yrs old. I can't really rely on him. I'm sure he'll understand what to do, but to get him to do it would be impossible.
It sounded like a good idea to me when my dr talked to us about it. But then he had talked about my having aura's when explaining how to use it, and I had to interrupt him to remind him that I didn't have aura's. But he still pushed it.
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