Hi, my name is Aubrey and I am a sophomore at the University of Cincinnati. My father has epilepsy with Grand Mal seizures. I am on this forum to find out more about epilepsy and see if I can help. Also I was assigned in my discourse communities class to look at an online community and see what the community offers, support and information, etc. I would like to ask a few questions and introduce myself. Just so you all know I am not going to use any names or present this to the class, I am just writing a paper analyzing this community. I thought it would be nice to pick this community since my father has epilepsy. If you do not feel comfortable answering any questions it is completely fine. If you don’t feel comfortable answering any of these questions in this forum you may send me a PM or an email (see link from the contact tab on my profile). Thanks for all your help in advance!
What do you consider a member of the community? (Someone who visits often, Someone who registered or Someone who continues to offer help and support.)
Do patients/community members suggest doctors or specialists to go to?
Do doctors join this community? Have you ever experienced a Doctor on this community? What was it like? Helpful?
Does this community offer treatments?
Has the community helped you treat epilepsy? Why do you continue to come back and help?
Do you look to the Internet for help and why? Do you do this because it is
confidential?
Are you part of this community for support/or to help /to offer suggestions? Why are you a part of the community?
Is “Coping-With-Epilepsy.com” more than a community to you?
What have you gained from all this?
What other sites do you go to look for support/help? Or do you go to any other sites?
Have you ever been to Epilepsy Advocate? I also researched this site but there does not seem to be a message board? Is this a reason you do/do not go to the site?
Is there a certain language to this community? I noticed you all use "E" as a slang word for Epilepsy. Are there any others?
Thanks Again!
What do you consider a member of the community? (Someone who visits often, Someone who registered or Someone who continues to offer help and support.)
Do patients/community members suggest doctors or specialists to go to?
Do doctors join this community? Have you ever experienced a Doctor on this community? What was it like? Helpful?
Does this community offer treatments?
Has the community helped you treat epilepsy? Why do you continue to come back and help?
Do you look to the Internet for help and why? Do you do this because it is
confidential?
Are you part of this community for support/or to help /to offer suggestions? Why are you a part of the community?
Is “Coping-With-Epilepsy.com” more than a community to you?
What have you gained from all this?
What other sites do you go to look for support/help? Or do you go to any other sites?
Have you ever been to Epilepsy Advocate? I also researched this site but there does not seem to be a message board? Is this a reason you do/do not go to the site?
Is there a certain language to this community? I noticed you all use "E" as a slang word for Epilepsy. Are there any others?
Thanks Again!