KarenB
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Well...here's the thing...he's already had seizures recorded on EEG when he was in status. So...they already know where they're starting from and how they're generalizing and all that sort of thing.
What his neurologist is really looking for is an EEG when he's NOT having seizures, because in kids you have to look for subtle waves and spikes and such that often happen at night even when not having seiuzres that would indicate certain syndromes like Lennox Gestault or Dravet or Landau Kleffner, etc. He's had clear EEGs before (when not having seizures) that didn't show any of the characteristics of any of these syndromes, but apparently, some don't manifest until the child grows older.
Our neurologist in Bangkok is topnotch at reading EEG's -- he picked up that Jon was having right temporal lobe seizures (from very subtile waves in EEG) years before the American docs caught it on EEG (they didn't catch it until Jon was actually having a seizure while on EEG).
His neurolologist was originally going to wait about a month until we get this current surge of seizures settled down to do the video sleep EEG, but decided yesterday to go ahead and do a baseline EEG because (and this goes back to the auras topic) Jon is having some strange, psychotic-like behaviors before and after seizures, so want to see if these are actually seizures or something else. And the doctor wants to catch some of these behaviors on video tape.
What his neurologist is really looking for is an EEG when he's NOT having seizures, because in kids you have to look for subtle waves and spikes and such that often happen at night even when not having seiuzres that would indicate certain syndromes like Lennox Gestault or Dravet or Landau Kleffner, etc. He's had clear EEGs before (when not having seizures) that didn't show any of the characteristics of any of these syndromes, but apparently, some don't manifest until the child grows older.
Our neurologist in Bangkok is topnotch at reading EEG's -- he picked up that Jon was having right temporal lobe seizures (from very subtile waves in EEG) years before the American docs caught it on EEG (they didn't catch it until Jon was actually having a seizure while on EEG).
His neurolologist was originally going to wait about a month until we get this current surge of seizures settled down to do the video sleep EEG, but decided yesterday to go ahead and do a baseline EEG because (and this goes back to the auras topic) Jon is having some strange, psychotic-like behaviors before and after seizures, so want to see if these are actually seizures or something else. And the doctor wants to catch some of these behaviors on video tape.