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I'm just curious if anyone has found this possible. I read this heartening book "Epilepsy: A New Approach" which says the author spoke to persons who managed to do this. (Such as just tell it to back off or something.)
I'd be curious to know if anyone has managed to do this and what techniques they used.
.......a monster gran mal (the only type I have) She tries to keep me from being injured and stays with me for quite a while after the two or three minute rigid- jerking- tongue biting (now permantly distorted) episode, during which she tells me I most often quit beathing and turn blue.
......I fell down a flight of stairs leading to our basement/den. Fortunately I didn't break my neck, but I had to lay there in a pile on the landing for a half hour before I could crawl up the steps.
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I recently spent three days in the hospital having a continuouslley monitored EEG.
...The getting up and running down the hall business has only begun in the last several months and we are trying to find a floor to cieling barrier. There is no door unfortunately. If we don't find something soon I'll have to build one in, though it's a really bad location for one, right in the middle of a narrow hall....
I wish some of the techniques described here would, or even could, work for me. When I start to experience my aura absolutely nothing seems real. ....... First I begin to have sudden flashes of fright and paranoia. Then, since these are feelings almost anyone might have in a transitory sudden moment, I go into denial about it, thinking,"Oh that was nothing. Just some freak feeling. Or there was something in my peripheral vision that moved suddenly and startled me." It gradually turns into feelings of stark reasonless fright bordering on terror. I become unable to distinguish between reality and illusion. In other words, by the time I figure out what's going on, I'm beyond all reason............... and turn blue.
I recently spent three days in the hospital having a continuouslley monitored EEG. That was fun...not. Having twenty five wires glued to your skull and being tethered to a ten foot cord is not my idea of a vacation! They withdrew all my meds and waited for me to produce three seizures. I obliged them with three classic beauties! The point is, when I had the last, and worst, one, They injected me through an IV with ativan.
I asked my neurologist about this and he said that there are some other drugs that might help. I have taken Xanax for years very infrequently to get to sleep. Now, when I get those wierd feelings that MIGHT lead to a seizure I take one. I do believe that it has kept me from going into one or has minimized it somewhat several times now.
I don't like chemical approaches to every little thing, but as I suppose you can tell, I really need to stop these things any way I can.
Has anyone had a similar experience?