Has anyone's doctors ever taken away all their medication?

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Zara-Newman

Zara-Newman

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I have been waiting two years to see this "specialist" and all he does is tell me I can't take my painkillers, allergy tablets, sleeping tablets and even one of my epilepsy tablets!(although that one is to be cut down on)

So now I am left with a constant pounding headache without being able to sleep for more than 3 hours a night, sneezing every 30 seconds...dreading when they start removing my lamotrogine!

I feel horrible, surely the point is to make me better and not worse, I have been given these tablets for a reason? Has anyone else's doctor ever done this?

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If I was you, I would search for a second opinion. This just doesn't seem right. Has your dr given you a reason as to why you can't take these medications? From what I understand, whilst some medications such as painkillers, sleeping medications, antihistamines and anti-epileptics can interact there's always a way around that (whether it be changing brands of the medications or finding medications with less interactions).
The only time I've been taken off medications was to test which ones were causing side-effects and which ones were actually working. Even then, it was done gradually, one medication at a time.
 
This was my 4th doctor, my GP always looks up pills against my epilepsy pills to see if they clash.
This is only my first day without pain killers and I feel awful.

He just said he thought they may be causing seizures, or stopping medications working.


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But I was getting the seizures far before I was on these medications.

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I don't want to discourage you from listening to your dr, but sometimes going with your gut is the best way.
Was this the specialist or your GP that said to go off all meds? You also have to weigh up the pros and cons of taking certain medications together (what is the effect of the interaction, are you able to deal with it, is it dangerous etc)
 
The specialist has told me to stop taking my medications - my GP looked them up in the 'interations' book he has, which he says shows no indication.

In my opinion I have never had an interaction, like I had one seizure a week, started taking the pills - and then still one a week, not any more severe.

So I can't see the logic.

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I would definitely seek a second opinion then. If you haven't noticed any significant change or any change at all, there's no reason for you to be in pain from not taking your regular medication. I'd also do some of your own research on your medication by using an online medication interaction checker (medscape has a great one where you can enter multiple drugs at the same time) to try and find out if there's any interactions, new information is always coming out so there's a possibility that your specialist knows something that your dr does not (although it seems kinda far-fetched)
 
I will ask for an appointment with my new neurologist, as apposed to the new epilepsy specialist.
I just think it is weird.

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A bit off topic, but I think I could write "allergy tablet lab rat" because I have tried every single one out there, but the thing I have been using for the past 3-4 years is a nose spray they call Nasonex here in Australia (a freeakin rip off but now available with a prescription for the last 2 months yaaay) and that has worked 1000x better than any tablet, plus it comes without the added drowsiness from allergy tablets.
 
They have let me keep a nasal spray, which is something at least.
I was on loradadine for allergies. It seems to work for me well, after trying loads since I was young.

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Be assertive can your gp talk to him.I on lamticle clobzam I dread doc doing that..did he do test before doing this...I ditto others get another opinion
 
This doctor in particular didn't do any test except nerve tests, like when they hit you with the hammer and stuff.

But there is a lot of results in my notes, I assume he was working off them.
This all came about within 30 mins of introducing himself, I didn't even know him before.

He did refer to my epilepsy as generalised epilepsy, where I was always told it was juvinile myoclonic epilepsy. I thought that was weird too. :/ I just don't trust him, all my family seem to. It is just a little hard going against what the Dr says when the family are all in his corner.



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Little tip when you see doc remain standing look down on him put hand out to shake then yo sit down. make him look you in the eye and take notes what he says always ask reason.google everything let him know you studied it all and please tell me where it says no pain killers make him validate it..are you Brit be nhs is trying save money and doc getting paid for each patient they kick out from hospital care..
I just not accept this unless he can validate why..you could write to him get him list they things he told you and reasons..If he do not do that then run fast to new doc.If this doc is confident in his reasoning then you got something to work with..Any doc worth his salt will do that..phone his secretary first thing next week..
I did read this week about panadol nurofen may be grey area be cause liver and kidney but nothing is proved as yet
 
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You may have pay for letter and if you Brit you got rights read your notes even have copies again may have pay which fair as people got to work.polite but firm assertive
 
Yes, I am from the UK.
It is codine, I can't even have it after seizures - so I am dreading it even more than usual.

He is writing a letter to me and my GP summarising the decisions.

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Coding should be ok.i take it for pain dihydrocodine.i know tramadol can cause serious I unable to take it.are you taking co-codimol that got panadol init..he may think the addictive side of oldie but catch 22 if in pain that not gong to help serious threshold.What is the Paine relief for if you don't mind me asking..try get referral to kings college if you in London Surberia area,it best in country for e
 
I do take co-codimol. It isn't because of addictiveness, I went through that with my GP a while ago and he switched me off it for a while and gave me something else.
Then he was happy I wasn't addicted to it, so he let me have it back.

The specialist says that he thought I was on too many pills, and if he takes them away then my seizures may lessen or stop.

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The link you give me could you pm it to me,I had bit trouble and keep forgetting the thread to come back to..this shop in London and I prepared to go even tho 100miles away it well worth it.
I think people don't understand it.as soon say hemp people freak it not going to get you high(unfortunately)it more the stuff make rope with body shop sell it in hand cream..It got be better than other stuff we put in ourselves I try anything,if it working go for it.Did you tell doc be he may think it pot and judging you on something wrongly.Holland and Barrett ought to sell it.they won't sadly..science is making break throughs with hemp and if get to Kings they may well give at stronger dose I know of people who have had it met them in out patients.If I remained under Kings I would asked if I could try it I may ask my doc but think got be licensed to prescribe it...It really do make me cross when say cannibis people go in a twist.i know my neurologist mention it once that was over ten years ago she said it looked positive.they are using it with cancer patients the results are good
 
There you go, I have sent it to you now!
They are going to start selling it in lots of places it has only been legal to sell it here for about a month. So it could spread to all the health shops.

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I just asked my son who doc he no see reason why can't take co-codimol you have take it by bucket loads over longish period of time get problems. What the problem you need pain killers cos they not that strong..maybe if give you something stronger that you take less often could be better..My son been told docs got stop giving scrip if can be bought over counter which fair play saves nhs .That properly his reasoning.but don't let them negate your pain
 
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