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Hello, my name is Tammy. I am really not positive when my seizures started. I am 47 and and when I first was told I had E was around 20 years ago.
I have partials, complex partials, grandmals and have went into status epileptis twice.
I remember a bicycle wreck that happened when I was around 7 or 8, my brother Jeff who also has E since, and my uncle David who had E.(He now is in Heaven due to a grandmal seizure that struck him while swimming and caused him to drown.) We lived on a pretty steep hill and we went on a ride with my uncle operating the bike, my brother behind him and myself on the handle bars. Well my uncle decided to slam on the brakes while coming down that hill I flew off the handle bars hit the road head first, (my forehead) my brother went flying off the bike hitting his head on the side. We had several bad road burns, my forhead swelled and bruised really bad, my brother the side of his heads hair was gone. Our parent just went to the drug store and bought several different things to treat us and not to the ER, I am not blaming my parents, I am sure if they really thought that was nessasary we you have been taken immediately.
I can remember being told by my very mean fourth grade teacher, I was 9 years old,not long after bike , wreck, when one day she decided to go from student to student and tell them what she thought of them-mostly mean and nasty things she had to say, for me, it was that sat at my desk like I had a wall built around me for my own private little area to deal with life, well could this have been because of such times I was having absence seizures?
Then several years later I was 14, I can remember asking my brother to walk up to the store to get me some poptarts, I had menstral cramps so bad and had taken about 4 to many over the counter pain killers and needed something in my stomach, I had to go to work. Well after my brother left I was watching Family Affair and the next thing I remember is big yellow balls coming out of the TV screen and me running from them and hitting the floor in the dining room. Well the next thing I remember is my brother coming in and throwing the pop tarts on my lap, I was laying on the couch and don't even remember asking him to go and get them from me.
Then about 8 years after that, the what I know now were partial and complex partial seizures. However, at first I literrly thought I was going crazy. I was hearing things, going through experiences that just weren't right, getting this odd feeling and able to hear the people around me talk only I was hearing something different and couldn't remember either what they said or what I heard. There is alot more to this.
When I went to the doc finally to see what was wrong with me I was diagnosed as having panic attacks and put on meds for that.
Then came my first grandmal, still not put on any meds for E or diagnosed with it.(which I know just one seizure doesn't mean you have it) Then right around a year later another grandmal then put on meds and told I had E. and that was about it no explantions or nothing just You have E take this med and see me in 6 months.
Finally about 10 years ago Finally, a new neuro I went to see told me those were not panic attacks they were P's and CP'S. And I was tryed on several other different meds to try to get them under control, no luck they controlled the GM's and thats all.
Then after some more years tests finally showing where in brain the seizures were coming from, my left temporal lope, and all kinds of other stuff that never showed up before, well I know why I had to have all those seizures to cause that damage so know what caused the damage but still not the seizures that caused the damage????????
Then surgery which removed a good bit of my left temperol lope. Seizure free for about 1 year, after recovery from surgery. and summer 2006 they return in full force, different CP's and oct 2006 Status.
Oh my this has gotten extremly long I could go on and on and on.
I was supposed to go in for another VEEG to see if they do more sugery. However I know have to have a hysterectomy, due to several female problems.
So a VEEG and a another possible brain surgery will have to put off for now.
I will be back soon as long as my computer doesn't crash again. Thanks to all for reading and can't wait to do more reading, answereing and more on here.
Tammy
I have partials, complex partials, grandmals and have went into status epileptis twice.
I remember a bicycle wreck that happened when I was around 7 or 8, my brother Jeff who also has E since, and my uncle David who had E.(He now is in Heaven due to a grandmal seizure that struck him while swimming and caused him to drown.) We lived on a pretty steep hill and we went on a ride with my uncle operating the bike, my brother behind him and myself on the handle bars. Well my uncle decided to slam on the brakes while coming down that hill I flew off the handle bars hit the road head first, (my forehead) my brother went flying off the bike hitting his head on the side. We had several bad road burns, my forhead swelled and bruised really bad, my brother the side of his heads hair was gone. Our parent just went to the drug store and bought several different things to treat us and not to the ER, I am not blaming my parents, I am sure if they really thought that was nessasary we you have been taken immediately.
I can remember being told by my very mean fourth grade teacher, I was 9 years old,not long after bike , wreck, when one day she decided to go from student to student and tell them what she thought of them-mostly mean and nasty things she had to say, for me, it was that sat at my desk like I had a wall built around me for my own private little area to deal with life, well could this have been because of such times I was having absence seizures?
Then several years later I was 14, I can remember asking my brother to walk up to the store to get me some poptarts, I had menstral cramps so bad and had taken about 4 to many over the counter pain killers and needed something in my stomach, I had to go to work. Well after my brother left I was watching Family Affair and the next thing I remember is big yellow balls coming out of the TV screen and me running from them and hitting the floor in the dining room. Well the next thing I remember is my brother coming in and throwing the pop tarts on my lap, I was laying on the couch and don't even remember asking him to go and get them from me.
Then about 8 years after that, the what I know now were partial and complex partial seizures. However, at first I literrly thought I was going crazy. I was hearing things, going through experiences that just weren't right, getting this odd feeling and able to hear the people around me talk only I was hearing something different and couldn't remember either what they said or what I heard. There is alot more to this.
When I went to the doc finally to see what was wrong with me I was diagnosed as having panic attacks and put on meds for that.
Then came my first grandmal, still not put on any meds for E or diagnosed with it.(which I know just one seizure doesn't mean you have it) Then right around a year later another grandmal then put on meds and told I had E. and that was about it no explantions or nothing just You have E take this med and see me in 6 months.
Finally about 10 years ago Finally, a new neuro I went to see told me those were not panic attacks they were P's and CP'S. And I was tryed on several other different meds to try to get them under control, no luck they controlled the GM's and thats all.
Then after some more years tests finally showing where in brain the seizures were coming from, my left temporal lope, and all kinds of other stuff that never showed up before, well I know why I had to have all those seizures to cause that damage so know what caused the damage but still not the seizures that caused the damage????????
Then surgery which removed a good bit of my left temperol lope. Seizure free for about 1 year, after recovery from surgery. and summer 2006 they return in full force, different CP's and oct 2006 Status.
Oh my this has gotten extremly long I could go on and on and on.
I was supposed to go in for another VEEG to see if they do more sugery. However I know have to have a hysterectomy, due to several female problems.
So a VEEG and a another possible brain surgery will have to put off for now.
I will be back soon as long as my computer doesn't crash again. Thanks to all for reading and can't wait to do more reading, answereing and more on here.
Tammy