Bluesbrkr
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Hello everyone,
I was diagnosed about a year and a half ago with adult onset Gelastic seizures. I was told that this is a VERY rare form of epilepsy. only about 15 - 20 cases a year in the USA. I have had no luck in finding others who have my condition, which makes it even harder to deal with. I'd love to find someone else who has this and compare notes.
In addition, I've been having a hard time lately dealing with the overall condition. I find I get pretty depressed some days and found this site hoping to have someone to talk to and get support. I am on anti-depressants, but I'm sure many of you know the occasional feeling of despair. Some days, I just can't stand the meds. I'll do fine for a couple of days, then have several mini-seizures, and lately, I have had a hard time dealing.
I talk to my wife about it, and she is very supportive of me, but she doesn't, and can't, understand how I really feel and how hard it can be.
Anyway, I'm not sure exactly what i'm looking for here.. maybe just someone who really understands to share with.
I look forward to meeting some of you and seeing what this forum may bring.
thanks,
Paul
I was diagnosed about a year and a half ago with adult onset Gelastic seizures. I was told that this is a VERY rare form of epilepsy. only about 15 - 20 cases a year in the USA. I have had no luck in finding others who have my condition, which makes it even harder to deal with. I'd love to find someone else who has this and compare notes.
In addition, I've been having a hard time lately dealing with the overall condition. I find I get pretty depressed some days and found this site hoping to have someone to talk to and get support. I am on anti-depressants, but I'm sure many of you know the occasional feeling of despair. Some days, I just can't stand the meds. I'll do fine for a couple of days, then have several mini-seizures, and lately, I have had a hard time dealing.
I talk to my wife about it, and she is very supportive of me, but she doesn't, and can't, understand how I really feel and how hard it can be.
Anyway, I'm not sure exactly what i'm looking for here.. maybe just someone who really understands to share with.
I look forward to meeting some of you and seeing what this forum may bring.
thanks,
Paul