crazybarbie
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Hi Everyone.
I've been reading this forum and just wanted to say Wow! This is an amazing site! I've learned more here than I have from my Neurlogist over the past five years! LOL
Here's a bit about me. (Warning - Long Story)
Approx. six years ago I ended up in my local Emergency Department. After having a CT I was told that I had a mild stroke. Long story short I ended up being transferred to a hospital in Toronto but the Neurlogist there said the scan was incorrect and what I was suffering from was Conversion Disorder. Okay. So I tried to move on. But after months AND months of not feeling well. Having weird sensations and my family doctor not listening to me and putting me on anti-depressants and not looking any further into my "complaints". I finally found a Neurlogist in Toronto who took the time to listen. Took the time to investigate and after having an EEG it proved and showed that I was indeed having seizure activity.
My Neurologist said I was having Complex Partial seizures. At the time I was having multiple seizures per day. I was exhausted, confused and depressed. But now I had someone who was going to help. He put me on Trileptal. After finding the right dosage I was feeling much better. I still have trouble with memory and fatigue. But I was feeling better for years.
Last October I had another seizure. It was bigger than previously. It was in my place of employment in front of many people.
A typical seizure for me would be the feeling my of stomach flipping up into my chest. Smelling a strong and unpleasant odour of mold. Then I would feel/hear buzzing inside my head. I could hear everyone and everything around me but yet can not respond to what is being said to me. Afterwards it feels like I had just ran a marathon here and then back again. My body feels like it was hit by a Mac Truck. My limbs feel like cement. It takes everything I have just to hold my head up.
My Neurologist up my dosage and I was good for a few more months.
A few weeks ago I ended up back in Emerg. I had a few more seizures at home and then another at work in front of co-workers and they sent me into hospital.
But seizures have changed. Now it happens right in the middle of a sentence while speaking. The only way I can describe it is like when watching a DVD and the screen freezes. I will be speaking a word and I will get the first letter out and then my brain freezes in mid-word and then in a wave the buzzing/twitching comes on.
The ER department ran level bloodwork on me and said my anti-seizures are EXTREMELY low. We thought that perhaps that the "Crestor" my family doc had just started me on for cholestrol was reacting against the Trileptal. So I stopped the Crestor immediately. But my family doctor does not believe that is what is going on. He has had me repeat the bloodwork and I'm waiting on results.
My neurologist has me rescheduled for another MRI because my last MRI showed new scarring on my brain as well as an "artifact" on my spine all of which didn't show up on my previous MRI.
I'm tired and frustrated. I don't know what to think. I have an extremely busy stressful job and it's getting harder and harder for me to cope.
I'm hoping that maybe my system has just conditioned itself to the Trileptal and perhaps I will have to be put on another med.
LOL Told you this was a long story. Congratulations if you made it all the way to the end. LOL
I've been reading this forum and just wanted to say Wow! This is an amazing site! I've learned more here than I have from my Neurlogist over the past five years! LOL
Here's a bit about me. (Warning - Long Story)
Approx. six years ago I ended up in my local Emergency Department. After having a CT I was told that I had a mild stroke. Long story short I ended up being transferred to a hospital in Toronto but the Neurlogist there said the scan was incorrect and what I was suffering from was Conversion Disorder. Okay. So I tried to move on. But after months AND months of not feeling well. Having weird sensations and my family doctor not listening to me and putting me on anti-depressants and not looking any further into my "complaints". I finally found a Neurlogist in Toronto who took the time to listen. Took the time to investigate and after having an EEG it proved and showed that I was indeed having seizure activity.
My Neurologist said I was having Complex Partial seizures. At the time I was having multiple seizures per day. I was exhausted, confused and depressed. But now I had someone who was going to help. He put me on Trileptal. After finding the right dosage I was feeling much better. I still have trouble with memory and fatigue. But I was feeling better for years.
Last October I had another seizure. It was bigger than previously. It was in my place of employment in front of many people.
A typical seizure for me would be the feeling my of stomach flipping up into my chest. Smelling a strong and unpleasant odour of mold. Then I would feel/hear buzzing inside my head. I could hear everyone and everything around me but yet can not respond to what is being said to me. Afterwards it feels like I had just ran a marathon here and then back again. My body feels like it was hit by a Mac Truck. My limbs feel like cement. It takes everything I have just to hold my head up.
My Neurologist up my dosage and I was good for a few more months.
A few weeks ago I ended up back in Emerg. I had a few more seizures at home and then another at work in front of co-workers and they sent me into hospital.
But seizures have changed. Now it happens right in the middle of a sentence while speaking. The only way I can describe it is like when watching a DVD and the screen freezes. I will be speaking a word and I will get the first letter out and then my brain freezes in mid-word and then in a wave the buzzing/twitching comes on.
The ER department ran level bloodwork on me and said my anti-seizures are EXTREMELY low. We thought that perhaps that the "Crestor" my family doc had just started me on for cholestrol was reacting against the Trileptal. So I stopped the Crestor immediately. But my family doctor does not believe that is what is going on. He has had me repeat the bloodwork and I'm waiting on results.
My neurologist has me rescheduled for another MRI because my last MRI showed new scarring on my brain as well as an "artifact" on my spine all of which didn't show up on my previous MRI.
I'm tired and frustrated. I don't know what to think. I have an extremely busy stressful job and it's getting harder and harder for me to cope.
I'm hoping that maybe my system has just conditioned itself to the Trileptal and perhaps I will have to be put on another med.
LOL Told you this was a long story. Congratulations if you made it all the way to the end. LOL