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I made a post earlier where I gave all the details of my visit to the ER....
Now we're past that.
But I am still having cluster seizures.
The first one of course is the one I originally posted about: Going to school, got a headache, seized, vomited, and repeated it for almost an hour on the way to the hospital.
The hospital group sucked but whatever, I'm over it...
Now I am still having seizures. They put me on klonopin in addiion to my lamictal, but the lamictal was still at 25 grams. Obviously not enough to stop what was happening.
3 days in... I am exaushted. I have slept most of the time, but my family is being subjected to continual seizures.
My husband is scared. He can't handle me alone. We're at my parents house, and everyone has to take turns with me...
Sometimes NOTHING happens, othertimes I still seize.
They changed my meds to Keppra but the doctor warned my parents that it will be a rough 2 days while it gets in my system.
We are now just starting day 2. I'm okay right now. My head hurts again... which may or may not be a sign. In Georgia we have such bad pollen that sometimes it could be my sinuses, or even just a pressure change from the cold front moving in.
I had an attack last night. After vomiting again, I had another small seizure or 2, but went to bed and slept, around 2:30 my husband had stepped out to the car to get something and I guess I had another one. He came in to find me crawling to the door on my hands and knees. It was so hot in our room because the door had closed (we use an attic fan to draw in cool air from open windows, but with the door closed there was no breeze at all. Just hot, wet sticky air) I was trying to get out to have some air... I guess I told them that. I remember something about it....I made it out and onto a soft futon mat that we had proped up, and siezed. My family came out, My husband yelled for them....
The seizures have become slightly less frequent, they have decliened in the intensity.
but my poor family.
What do I do?
They are so busy trying to tell me I'm okay and that they are't scared....
but I can see it.
My husband cried while he held me last night.
My mother downplaying her fear, but I can see it. I have heard her admit that she is scared to others, but says she isn't to me.
She wanted to "talk" to my husband about showing his emotions because it can make things worse, but really and truly I feel worse because they are all walking around hiding their fear.
I'm scared.
I understand why they would be...
How do I fix this?
How do I get them to just talk to me and open up?
I keep telling them that I don't feel it.
They know I don't.
The one and only time I have been awake and been able to feel the tremors it felt like I grabbed the electric fence (something I did only a couple times as a kid) just like a volt shot through me and then it was over.
How Do I get them to be as honest with me?
I keep asking questions.
My mom keeps telling me that no one would notice if I had a seizure in public.
Yet, I know I jerk... and I have bit my lip pretty hard..
Now we're past that.
But I am still having cluster seizures.
The first one of course is the one I originally posted about: Going to school, got a headache, seized, vomited, and repeated it for almost an hour on the way to the hospital.
The hospital group sucked but whatever, I'm over it...
Now I am still having seizures. They put me on klonopin in addiion to my lamictal, but the lamictal was still at 25 grams. Obviously not enough to stop what was happening.
3 days in... I am exaushted. I have slept most of the time, but my family is being subjected to continual seizures.
My husband is scared. He can't handle me alone. We're at my parents house, and everyone has to take turns with me...
Sometimes NOTHING happens, othertimes I still seize.
They changed my meds to Keppra but the doctor warned my parents that it will be a rough 2 days while it gets in my system.
We are now just starting day 2. I'm okay right now. My head hurts again... which may or may not be a sign. In Georgia we have such bad pollen that sometimes it could be my sinuses, or even just a pressure change from the cold front moving in.
I had an attack last night. After vomiting again, I had another small seizure or 2, but went to bed and slept, around 2:30 my husband had stepped out to the car to get something and I guess I had another one. He came in to find me crawling to the door on my hands and knees. It was so hot in our room because the door had closed (we use an attic fan to draw in cool air from open windows, but with the door closed there was no breeze at all. Just hot, wet sticky air) I was trying to get out to have some air... I guess I told them that. I remember something about it....I made it out and onto a soft futon mat that we had proped up, and siezed. My family came out, My husband yelled for them....
The seizures have become slightly less frequent, they have decliened in the intensity.
but my poor family.
What do I do?
They are so busy trying to tell me I'm okay and that they are't scared....
but I can see it.
My husband cried while he held me last night.
My mother downplaying her fear, but I can see it. I have heard her admit that she is scared to others, but says she isn't to me.
She wanted to "talk" to my husband about showing his emotions because it can make things worse, but really and truly I feel worse because they are all walking around hiding their fear.
I'm scared.
I understand why they would be...
How do I fix this?
How do I get them to just talk to me and open up?
I keep telling them that I don't feel it.
They know I don't.
The one and only time I have been awake and been able to feel the tremors it felt like I grabbed the electric fence (something I did only a couple times as a kid) just like a volt shot through me and then it was over.
How Do I get them to be as honest with me?
I keep asking questions.
My mom keeps telling me that no one would notice if I had a seizure in public.
Yet, I know I jerk... and I have bit my lip pretty hard..