mom2marcus
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Hi everyone,
My name is Kim and my son whom is 11 months old, just got diagnosed with Epilepsy last Tuesday. Since then his seizures have increased tenfold and is upto 40/day and we are trying to figure out the right med mix. He was on Fenobarb for 2 days..and (the hospital gave him an iv of that) and he was so out of it he hurt himself and he tried clobazam and that was doing nothing..so we are onto tripirimate (sp?)..i hope it works..
I just feel so helpless and scared when he has them b/c he gets so disorientated and he's not himself. His seizures only last a second or so..the longest 4 seconds...and his eyes roll and goes limp in the neck..(if he's standing he looses his balance and falls..)...
Is there anyone else that has small kids that got dianosed??..
We are still waiting to get an mri and eeg done in a week or so..but the neurologist said it was epilepsy b/c she witnessed 2 seizures when we brought him in...
and advice would be great....
Kim
(mom to marcus)
My name is Kim and my son whom is 11 months old, just got diagnosed with Epilepsy last Tuesday. Since then his seizures have increased tenfold and is upto 40/day and we are trying to figure out the right med mix. He was on Fenobarb for 2 days..and (the hospital gave him an iv of that) and he was so out of it he hurt himself and he tried clobazam and that was doing nothing..so we are onto tripirimate (sp?)..i hope it works..
I just feel so helpless and scared when he has them b/c he gets so disorientated and he's not himself. His seizures only last a second or so..the longest 4 seconds...and his eyes roll and goes limp in the neck..(if he's standing he looses his balance and falls..)...
Is there anyone else that has small kids that got dianosed??..
We are still waiting to get an mri and eeg done in a week or so..but the neurologist said it was epilepsy b/c she witnessed 2 seizures when we brought him in...
and advice would be great....
Kim
(mom to marcus)