Hi Andrew
Great to hear from you, I hope you are getting a lot of positive feedback and support from this wonderful website, I know I have really enjoyed my time on here and everyone was more than supportive during my recent brain surgery.
I was interested to read about your taking B vitamins for your seizures, as I'm writing a book about my epilepsy, and have just finished a couple of university studies on epilepsy, I have not really heard from anyone else that has used B vits to help their epilepsy, tell me more, I'm intrigued. I was diagnosed with Temporal Lobe Epilepsy in 1986 at the age of 23 so I sympathise with you having been stuck with it for all that time, it's not much fun is it?
I agree with you about the lack of effect of anti-convulsants on my condition, I do however know that it is one of the more difficult types of epilepsy to control (trust me to be awkward) I have recently started taking Trileptal along with my Keppra, and they have actually stopped my terrifying auras, for which I shall forever be grateful!! I have always said that I could manage life with epilepsy if it wasn't for these terrifying Simple Partial/Auras, and I'm pleased to say that my surgery seems to have really helped my Complex Partials too, so I'm pleased about that, especially as it was my second lot of brain surgery, I was five years seizure free after the first op, then it decided to come back again.
Do you know what caused your seizures in the first place? Have you ever been offered surgery? Have you been happy with the treatment you've received for your seizures? What part of the UK are you in, I'm in Kettering, Northants, and have had Professor John Duncan looking after me at The National Hospital of Neurology and Neurosurgery, Queens Square, London, they have been fantastic over the years, but in the early days, I used to see a guy at Northampton General, and he would just peer over his glasses at me and say take another one of these, and come back in 6 months! I hated going there, I think it's such a personal, unique and quite terrifying condition, that I think it requires a sympathetic ear doesn't it?
Anyway, I hope you get as much from ths wonderful website as I have done, and that I hear from you in the near future.
Best Regards
Elaine