Before I had epilepsy I always thought a '
seizure' was when you were on the floor and your whole body started shaking like crazy. I had no idea there were so many different types and I really didn't know about that until I joined this web site, I've learned a lot here.
My ears ring all of the time. But all of a sudden the ringing gets loud for awhile, almost like someone turned up the volume suddenly.
Out of the blue, I'll feel fear or sudden sadness for no reason.
I sometimes get goosebumps - skin crawly feeling - on my cheek.
I can be somewhere and things look weird or unfamiliar to me. Then that feeling goes away.
Sometimes when people talk I can't understand what they are saying. I know the words, but I can't understand the implication.
These sound like things that I have during a simple partial. I'll get tingling in my lips and fingers and be confused about what's going on around me. I have ringing in my ears but I don't know if it's seizure or med related because it is a side effect of one of the meds I'm on.
I have a HORRIBLE time remembering words. I know exactly what I want to say but just can't get the word out. My father-in-law was bringing me home a while ago and was having trouble finding my drive way because it was dark outside. I told him it was "right in front of the really tall thing", just couldn't think of the word telephone pole.
Have you always been nervous when you talk in front of people or is this something new? Stress can be a seizure trigger, I don't know if you could be starting to have one or not, and it could be one of the reasons you have are having trouble.
Keeping a diary is a very good thing to do. Try to write down what you did during the seizure too, not just that you had one. This way when you see the neuro you have the answers to the questions he might ask.
Meds aren't fun to take! When I was first diagnosed I had to try SEVERAL different ones before I found out which ones worked best for me. Some may have helped with my seizures but I had to go off of them and try something else because I couldn't deal with the side effects. I know this has happened with many people. My grandma started falling out of bed at night when she was in her 70's and the dr found out she was having seizures in her sleep. He put her on Keppra. One side effect that some people get from Keppra is Keprage, it makes you very angry. She started swearing (which she never did, I think the worst word I ever herd her say was shoot) and yelling at my grandfather constantly. The dr switched her to something else and I don't believe she had any major side effects from it.
Meds can react differently with everyone. Some people my have problems with the med and other's don't. It may take a month or longer for your body to get used to the med and the side effects my stop after that, this has happened with me. Some people are able to use their diet or other things to help with their seizures but others can't and need to take meds.
I hope the appt with your neruo goes well.