Hi,
Its a tough one, to try and answer 'how do I feel since my temporal lobectomy surgery to eliminate my seizures'.
I don't know where 1 FULL year has gone!.. It literally feels like I had my surgery a month ago.
Since my surgery, I've not had a seizure, which was (obviously) the whole point, and I feel blessed in that sense.
Quality off life can be put into a different category...
My issues since the surgery have been the random auras I've had, which does take me a back a few steps... That intense fear "am I about to have a seizure" is still prevalent.
My boundaries are very much unclear, what can/can't do (Eg. If I'm on a treadmill, should I push myself to chase that last kilometer, or as I did pre-surgery, to STOP if I ever felt like I was 'over-working' myself?...
That's how I've lived my adult life, that constant fear, the 'tremors' I'd have seconds before my seizures still seem to happen.
My anxiety/depression seems to have popped their ugly heads over the past few months. Mental strains seem to be an issue post surgery.
I think the following issues are down to taking anti epilepic medication for years, and the long term effects...
Feeling extreme fatigue,
being far more temperamental, (which do seems to be more prevalent post-op).
My memory seem it have become ever worse, but slowly improving over the past 12 months. Hopefully that continues.
By bones feel extremely brittle,
My muscles feels Weak.
I seem to have constant paranoia!? What others think off me, what I may have done/should have done after having spoken to someone etc...
I'm having therapy to help overcome any issues with anxiety I may have, so I'm hoping I get over the hurdle.
Anti-epilepic drugs really are the most horrible thing in the world.
I'm 100% happy I had the surgery. Stopping my seizures were more important to me than the side-effects off the surgery I've had.
If my seizures were to ever return, then I'd REALLY struggle.
I feel like I'm still going through my stages off recover, which is weird to say, considering I has my surgery 12 months ago!.
I think I've covered most off what I can think of..