Hello everybody, my daughter is 7 and she started taking Ethoduximide 3 months ago for her absence seizures.
When she hit the 3ml twice a day she developed mouth sores, a sore throat, and high fever. Her blood work was good, so the neuro had us continue. She had the same thing happening soon after I increased the dose to 5 ml and now at 6 ml twice a day. I am very worried, because of the serious side effects of blood dyscrasya and drug induce lupus, but her blood work again was ok, and the neuro want us to continue. She also says that it's not the medicine making her sick, which to us is actually so obvious because it happened each time right after the dose increase. She got sick 3 times in 1 month and a half. She is usually an healthy kid.
I kept taking her to the pediatric clinic and the drs were siding with the neuro, until finally, this last time, one admitted that there is a connection with Ethosuximide. But she also said that she understand why the neuro want us to stick to it, the drug seems to work and it's the best for her type. Valproic acid and Lamotrigine have more side effects.
Did anyone have the same side effects? I can't find anything like this anywhere.
How often do you of blood work?
Thank you for reading.
When she hit the 3ml twice a day she developed mouth sores, a sore throat, and high fever. Her blood work was good, so the neuro had us continue. She had the same thing happening soon after I increased the dose to 5 ml and now at 6 ml twice a day. I am very worried, because of the serious side effects of blood dyscrasya and drug induce lupus, but her blood work again was ok, and the neuro want us to continue. She also says that it's not the medicine making her sick, which to us is actually so obvious because it happened each time right after the dose increase. She got sick 3 times in 1 month and a half. She is usually an healthy kid.
I kept taking her to the pediatric clinic and the drs were siding with the neuro, until finally, this last time, one admitted that there is a connection with Ethosuximide. But she also said that she understand why the neuro want us to stick to it, the drug seems to work and it's the best for her type. Valproic acid and Lamotrigine have more side effects.
Did anyone have the same side effects? I can't find anything like this anywhere.
How often do you of blood work?
Thank you for reading.