I'm new and just learning about all of this
I was on some place about of all things cats and was just plain interested in people and made many posts in reply and was called a "troll" - I did not do anything that I knew that was wrong but I left that place it was weird anyway.
Here, I just want to learn more.
I've been to many hospitals but believe me all of it is documented and actual with mri's and eegs -
The reason I am posting now, is, wait a minute, lost the thought, oh what do you do when you have an EEG and they say (with any test) it was in normal range - WHAT is normal??? My neurologist finally diagnosed me with EPILEPSY and have PROOF - I never felt so good to finally find the ROOT of my weird "episodes".
I will REFUSE to go to the ER because I fear the incompetence of the EMT's from past experiences AND with a single seizure - it's here, it's gone, no big deal.
That's why on my cell phone now, I put Carey on a speeddial so IF during post-ictal I can push the buttons and at least get a moan out or nothing, he knows by caller ID that it is me.
I feel sorry for anyone with any disorder or disease that is peculiar or considered "faking" because they need some sort of help.
I've been post-ictal and called "faking".
I used to write as I was in pre, during, and post, and the EMT's as I said somewhere else on the forum would say I was PLANNING the event.
NO - I was recording the episode (this was prior to diagnosis) in a private journal book, because I knew I would not remember.
I'm not down on ALL EMT's - some are great and well-informed.
My neuro. is weird - she stares at you and takes in every inflection, word pattern, everything - then, pops out with a diagnosis - she's a neurodiagnostician.
Sorry for rambling. Rambled all my life. I have read somewhere it has something to do with the TL???
Anyway, my heart goes out to the children who are convinced by their parents that they are sick when they aren't but the parent is.
It had to be a hard thing to shut people out of the forum.
Please, me being new, I am learning - so if I ever break a "rule" let me know.
I just want to learn and to hopefully better comprehend what is going on in my "brain" .
Anyway, I reckon that's all.
Bernard, you and the other moderators are awesome - you make me feel "safe" on here. Thanks. It is so good to go somewhere you just might "fit in" with TLE that even the drs seem to not have a good grip on.
Much love to Stacy, Bernard. Bless her.
Cya,
GL