Karenhanby
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I have bi-frontal epilepsy and after doing a ton of research and speaking with my neuro, a second opinion from a neuro at the major teaching hospital in my city, and speaking with the ENT that will be performing the surgery...I have decided to get the VNS. I will be getting it mid January. I am a runner and a tennis player, so my main concern was how it will effect my ability to exercise. I have been on just about every AED, with the exception of pheno. I have gotten severe rashes, hives, increased seizures...just about every horrible reaction you can get. I take a very high dose of onfi, but I still have breakthroughs. I have weighed the pros and cons and have decided the rewards out way the risk. I am working hard to get in the best possible shape prior to surgery in order to have a quick recovery. I will add entries as the surgery draws near and through the recovery process. Keep your fingers cross that this will put epilepsy in the "background" of my life. I have a 7 year old and aging parents. My disability can not control my life anymore!!!
xoxo
Karen
xoxo
Karen