Took Rebecca to her latest of doctors appointments. This was for a GI M.D.
He wants to test Rebecca for Celiac, though I have read in many online sources how this test is vastly overrated. There are many false negatives, so I am not greatly excited about it. Plus she does have to be eating gluten, and much of my research says that challenging the diet for only two weeks isn't going to cut it. So... I am searching for info on the % of false negatives and such.
He tells me there is nothing wrong with her GI system now. Yes, because I have spent the past three years supplying her with good nutrition, and learning the positive benefits of magnesium etc. Understanding how healthy elimination is a key to overall health. Hello doctors...
He did agree with the probiotic direction, and I even read that there is current research that shows probiotics actually recovering Celiac patients symptoms.
Celiac - Probiotics
However, the one probiotic (Align) that he claimed was far better than the one we are currently using (Natren-Healthy Trinity) has a lower bacterial count.
Align - Each Align capsule contains at least 1x10(ninth) colony-forming units (CFU) of live Bifantis bacteria at teh time of manufacture. This is the same as 1 billion bacteria
Natren - 1 capsule
Lactobacillus acidophilus NAS 5 billion cfu
Bifodobacterium bifidum Malyoth 20 billion cfu
Lactobacillus bulgaricus LB-51 5 billion cfu
He also mentioned that there are mitochondrial syndromes they are finding that do cause seizures. This is an area that has come up frequently in my reading, since I have three children with auto-immune issues.
All he recommended here is to add supplements:
COQ10
Carnitine
frequent meals - don't miss carbs
She did start her period that morning, and felt awful while we were there. Actually throwing up in the room while waiting for the doctor. "How embarrassing!" she said.
She got clammy and then cold afterwards. I wish I had her glucose meter with me to see what was occurring. She felt awful yesterday (the day after) as well, but today she was ready to go back to work.
If this has occurred in the past, and she tried to push through it at school, I can see how it would send her over her threshold level.
She is now 5 months seizure free, and in one week will be the longest she has been without a seizure. So we keep on keeping on...
She sees an endocrinologist on August 30th