Hello,
I'am new to this,and a mom who is frustrated.My son who is 7 years old has epilepsy.In Nov.2006 he had 3 seizures in a 1/2 hr.I called 911 and when they came they told me it was a febrile seizure (high fever).When we got to the hospital he did not wake up so they ambulance him down to a childrens hospital where he woke the following morning.The mri they did fould that he has a chiari 1 malformation,(Which I just don't know enough about,and doctors just say we will do a yearly mri to make sure it don't grow)but they say that is not causing the seizures.Has anyone ever heard of chiari malformation?He also started with migranes 2 weeks ago and gave more meds for that too..I guess I'am frustrasted because all they do is but him on tons of meds.He takes 6 topamax a day a 2 tsp. of trileptal a day.It is controling him from having grand mals but like yesterday he had a mini seizure where he talks about things that don't make sense and than stares off into space and than goes to sleep for 2 to 3 hours after.I sometimes wonder if getting a second opinion would be a smart choice or do you just keep taking the medication and wait.Just wondering if anyone has any suggestions.
Thanks
Tricia
I'am new to this,and a mom who is frustrated.My son who is 7 years old has epilepsy.In Nov.2006 he had 3 seizures in a 1/2 hr.I called 911 and when they came they told me it was a febrile seizure (high fever).When we got to the hospital he did not wake up so they ambulance him down to a childrens hospital where he woke the following morning.The mri they did fould that he has a chiari 1 malformation,(Which I just don't know enough about,and doctors just say we will do a yearly mri to make sure it don't grow)but they say that is not causing the seizures.Has anyone ever heard of chiari malformation?He also started with migranes 2 weeks ago and gave more meds for that too..I guess I'am frustrasted because all they do is but him on tons of meds.He takes 6 topamax a day a 2 tsp. of trileptal a day.It is controling him from having grand mals but like yesterday he had a mini seizure where he talks about things that don't make sense and than stares off into space and than goes to sleep for 2 to 3 hours after.I sometimes wonder if getting a second opinion would be a smart choice or do you just keep taking the medication and wait.Just wondering if anyone has any suggestions.
Thanks
Tricia
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