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Hello all,
My son Oliver has had tonic clonic seizures since days before he turned four months. It's been an uphill battle ever since. His seizures are idiopathic, and meds don't seem to be working. He is currently on topiramate (60 mg twice a day) and Clonazepam (0.1 mg twice a day slowly increasing to therapeutic dose). He has been weaned off of keppra and phenobarb. We are working on getting him into a cbd trial - has anyone out there have success with cbd???
Apparently I haven't been around long enough to post a link so if you want to see and learn more about Ollie, search "oliver's tonic clonic seizure" on YouTube and you will see a video of him.
My son Oliver has had tonic clonic seizures since days before he turned four months. It's been an uphill battle ever since. His seizures are idiopathic, and meds don't seem to be working. He is currently on topiramate (60 mg twice a day) and Clonazepam (0.1 mg twice a day slowly increasing to therapeutic dose). He has been weaned off of keppra and phenobarb. We are working on getting him into a cbd trial - has anyone out there have success with cbd???
Apparently I haven't been around long enough to post a link so if you want to see and learn more about Ollie, search "oliver's tonic clonic seizure" on YouTube and you will see a video of him.