Mom2many
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We have a large family combination of 12 children.
Our family has no family history of Epilepsy. We had many months of headaches and day dreaming with a few dr.s visits, all the while the Doctors said our DD was growing in puberty.
On July 4th 2007 our lives would thrust into E.
Marielle had several grand mals, and complex partial seizures. 3 days later would come the diagnosis of Mesial Sclerosis.
Marielle has since gone through 4 meds changes and after 16 months we have learned that she does much better than us. She teaches us everyday that each day is new and we must embrace it for anything it has to offer.
Marielle is not a typical child in that over time we have seen much regression in her daily life. Her memory is affected most which affects everything. Somethings for instance, she has caused 2 fires in the kitchen due to walking away and forgetting what she had been doing.
Also, up until this summer we used Medications containers with days of the week. One morning Mari forgot the date after having her morning meds and took more meds..thus over dosing and landing in the hospital.
We have had to make many changes like:
Marielle can only cook under supervision (She has notes posted in the kitchen to remind her).
Marielle can only have her meds dispensed by me. (Meds had to be locked up)
:twocents:I share these things because I have found through my many hours of research that these types of things are not addressed often. I also never knew 16 months ago my daughter could lose so much memory that she would fall behind by 3 grades in school. I had no idea that life would be today what it is for us.
Marielle has left an impression on the hearts of many. For this I am grateful because I know I am no longer alone....as I felt from the start.
I greatest wish would be to meet another family with a CHILD that has Mesial Sclerosis.
Our family has no family history of Epilepsy. We had many months of headaches and day dreaming with a few dr.s visits, all the while the Doctors said our DD was growing in puberty.
On July 4th 2007 our lives would thrust into E.
Marielle had several grand mals, and complex partial seizures. 3 days later would come the diagnosis of Mesial Sclerosis.
Marielle has since gone through 4 meds changes and after 16 months we have learned that she does much better than us. She teaches us everyday that each day is new and we must embrace it for anything it has to offer.
Marielle is not a typical child in that over time we have seen much regression in her daily life. Her memory is affected most which affects everything. Somethings for instance, she has caused 2 fires in the kitchen due to walking away and forgetting what she had been doing.
Also, up until this summer we used Medications containers with days of the week. One morning Mari forgot the date after having her morning meds and took more meds..thus over dosing and landing in the hospital.
We have had to make many changes like:
Marielle can only cook under supervision (She has notes posted in the kitchen to remind her).
Marielle can only have her meds dispensed by me. (Meds had to be locked up)
:twocents:I share these things because I have found through my many hours of research that these types of things are not addressed often. I also never knew 16 months ago my daughter could lose so much memory that she would fall behind by 3 grades in school. I had no idea that life would be today what it is for us.
Marielle has left an impression on the hearts of many. For this I am grateful because I know I am no longer alone....as I felt from the start.
I greatest wish would be to meet another family with a CHILD that has Mesial Sclerosis.