OK, I've already introduced myself once. I know this is the introductions area but I didn't see an appropriate area to ask these sorts of questions. I don't quite recall all of my introduction, but based on my memories from a few weeks ago I was pretty adamant that my seizures were an isolated incident and I wasn't going to be taking any of these meds the docs were suggesting. VERY shortly after, I had another complex partial and this time while my kids were staying with us. (Young kids, I share custody with my ex)
SO, after that night and like 4 more seizures in the last couple of weeks, I started taking Keppra (500mg 2x a day) and am ready to admit that, alright, at 41yrs old my brain has decided to have seizures on a fairly regular basis, so I guess I officially have epilepsy.
My seizures are ALL at night. I want to talk to others who have this nocturnal shit going on. I'm not really too freaked out about it because it seems like, even though it's a pain in the ass, and the shoulders, and the neck sometimes, many others who have tonic/clonic style seizures have it much worse than me. I had two of those to kick off this journey and they SUCKED!
So other than looking for direction about where else I should ask these sorts of questions, are there any others out there that started having seizures so late in life with ALL negative tests? Any others with ONLY nocturnal and 90% complex partial upon waking?
The doctors haven't been able to tell me much other than, "Here, swallow these pills." Surely though, someone else has had this same thing happen.
Thanks for listening - Jason
SO, after that night and like 4 more seizures in the last couple of weeks, I started taking Keppra (500mg 2x a day) and am ready to admit that, alright, at 41yrs old my brain has decided to have seizures on a fairly regular basis, so I guess I officially have epilepsy.
My seizures are ALL at night. I want to talk to others who have this nocturnal shit going on. I'm not really too freaked out about it because it seems like, even though it's a pain in the ass, and the shoulders, and the neck sometimes, many others who have tonic/clonic style seizures have it much worse than me. I had two of those to kick off this journey and they SUCKED!
So other than looking for direction about where else I should ask these sorts of questions, are there any others out there that started having seizures so late in life with ALL negative tests? Any others with ONLY nocturnal and 90% complex partial upon waking?
The doctors haven't been able to tell me much other than, "Here, swallow these pills." Surely though, someone else has had this same thing happen.
Thanks for listening - Jason