MaryK
Stalwart
- Messages
- 373
- Reaction score
- 4
- Points
- 68
Hi my name is MaryK...I posted a bit about me when registering.
I have had seizures since I was at least 19 when I had a major seizure and was put on phenobarb and dilantin.. Over the years I have had no major grand mal seiziures, but have had numerous complex type seizures, depending on the time of the month...time of the year, etc. I also have abdominal seizures if I am very tired. I have been trying to reduce my phenobarb by 15 mg a day (on 120) and was doing good up until a week ago. ( my phenobarb level was 41)..I seem to be having a few break-through seizures, although I am not positive. My lower jaw will twitch a couple or times, or my eyelids close abruptly...but fully conscious. Of course there is some concern.
I also have rheumatoid arthritis and sjogrens and thyroid issues...Basically, an autoimmune mess. I need to go and take the flashing smiles off.
Any ideas or comments? Thank you.
MaryK
I have had seizures since I was at least 19 when I had a major seizure and was put on phenobarb and dilantin.. Over the years I have had no major grand mal seiziures, but have had numerous complex type seizures, depending on the time of the month...time of the year, etc. I also have abdominal seizures if I am very tired. I have been trying to reduce my phenobarb by 15 mg a day (on 120) and was doing good up until a week ago. ( my phenobarb level was 41)..I seem to be having a few break-through seizures, although I am not positive. My lower jaw will twitch a couple or times, or my eyelids close abruptly...but fully conscious. Of course there is some concern.
I also have rheumatoid arthritis and sjogrens and thyroid issues...Basically, an autoimmune mess. I need to go and take the flashing smiles off.
Any ideas or comments? Thank you.
MaryK