Elaine H
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Hi All
It's been four weeks now since my surgery, and I have had two very very small Complex Partial Seizures, and then a whole lot of totally weird and very intense auras, anyone reading this who knows me, will know of my fascination with the auras, or Simple Partial Seizures, and I don't think I have ever experienced such incredible emotions, moods, tastes, Epigastric rising, and general freakedoutness!!!! That's a word and a half eh?!
I have always said prior to my surgery, that I could deal with having epilepsy if it wasn't for the auras, they are, as anyone with Temporal Lobe Epilepsy will know, amongst the most terrifying things I have ever experienced! How many times have I tried to explain an aura to someone, I guess some of you guys have to eh? Help me out guys? How do we explain it, for me personally, I have actually sat and described one of my auars to Mark, I have talked him through it, of course, sometimes I can't, I'm just so wrapped up in it, and this may sound bizzare, but I actually get totally carried away with them, I have read about people feeling almost like they have experienced a religious, spiritual event, emotion, dream whatever you want to call it, the taste is always the same for me, but don't ask me to describe it, I always say, that it's a bit like suddenly being plucked from the situation you are in at the time it starts, then you are almost transported into a dream or a situation from your past, maybe your childhood, maybe just a past memory or emotion, wow!!!
I would love to hear about all your auras, please tell me how they start, do they always go to Secondary Generalised whereupon a seizure follows the aura, or are you just left completely dazed and scared senseless by them, all my problems were on the right side of my brain, so when I have the aura, I get goose bumps down the left side, my aura and all it's sensations, emotions, general feelings, always "flashes"up the left side of my body, please, somebody out there, tell me you understand what I'm describing, and that you understand? I also want to know if anyone has incredible surges of emotion, I can feel intensely happy and euphoric for no real apparant reason, I can be sat reading the paper and bang! I know the Limbic System where my right temporal lobe is looks after emotions, but sometimes I'm like wow, I love the whole world, and everyone in it!
Love to you all, I'm still doing well after the op, and I feel like a different person, the auras are not as many as when I first got out of hospital, I think it was just stuff settling down, I am gonna shake my surgeon's hand when I see him in London on August 20th, what a guy!!
I hope you are ok, and thanks again for all your much appreciated, wonderful support, and if anyone's considering, or going for surgery, and you want to ask me anything, I'd be only too happy to help!
God Bless & Loadsalove:woot:
Elaine xx
It's been four weeks now since my surgery, and I have had two very very small Complex Partial Seizures, and then a whole lot of totally weird and very intense auras, anyone reading this who knows me, will know of my fascination with the auras, or Simple Partial Seizures, and I don't think I have ever experienced such incredible emotions, moods, tastes, Epigastric rising, and general freakedoutness!!!! That's a word and a half eh?!
I have always said prior to my surgery, that I could deal with having epilepsy if it wasn't for the auras, they are, as anyone with Temporal Lobe Epilepsy will know, amongst the most terrifying things I have ever experienced! How many times have I tried to explain an aura to someone, I guess some of you guys have to eh? Help me out guys? How do we explain it, for me personally, I have actually sat and described one of my auars to Mark, I have talked him through it, of course, sometimes I can't, I'm just so wrapped up in it, and this may sound bizzare, but I actually get totally carried away with them, I have read about people feeling almost like they have experienced a religious, spiritual event, emotion, dream whatever you want to call it, the taste is always the same for me, but don't ask me to describe it, I always say, that it's a bit like suddenly being plucked from the situation you are in at the time it starts, then you are almost transported into a dream or a situation from your past, maybe your childhood, maybe just a past memory or emotion, wow!!!
I would love to hear about all your auras, please tell me how they start, do they always go to Secondary Generalised whereupon a seizure follows the aura, or are you just left completely dazed and scared senseless by them, all my problems were on the right side of my brain, so when I have the aura, I get goose bumps down the left side, my aura and all it's sensations, emotions, general feelings, always "flashes"up the left side of my body, please, somebody out there, tell me you understand what I'm describing, and that you understand? I also want to know if anyone has incredible surges of emotion, I can feel intensely happy and euphoric for no real apparant reason, I can be sat reading the paper and bang! I know the Limbic System where my right temporal lobe is looks after emotions, but sometimes I'm like wow, I love the whole world, and everyone in it!
Love to you all, I'm still doing well after the op, and I feel like a different person, the auras are not as many as when I first got out of hospital, I think it was just stuff settling down, I am gonna shake my surgeon's hand when I see him in London on August 20th, what a guy!!
I hope you are ok, and thanks again for all your much appreciated, wonderful support, and if anyone's considering, or going for surgery, and you want to ask me anything, I'd be only too happy to help!
God Bless & Loadsalove:woot:
Elaine xx