thornton8000
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So Finally got a DX!
I have seizures! and a mild form of PNES.
The new neuro actually listen and is looking at over 300 plus papers I brought in of med records and my seizure journal, and listened to me and my wife and my kids that are old enough to talk about what happens to me when I have my seizures.
He's ordering med level blood work and when that comes back he plans on upping my keppra to 750 2x daily and maybe lowering my topamax and maybe adding something new to the mix, ordering a MRI for paresthesia and to look for lesions on my brain since my legs and hands go numb all the time and going to help with my back pain also.
He's going to help out more than my last one Thnak youall for helping out and telling me to get a 2nd opinion pushing me to keep a detail journal even if I thought it was small or stupid.
I did forget to tell him some things since I did have my kids but he did listen and got the jist of things and more will be said in future appointments, and he looked over my 17 year old med record from my bicycle accident and chose to use that as a deciding factor as a starting factor as you have seizures and the MRI may help him decide if I have E since my brother has E as well and he's going to use the MRI to rule out MS as well.
So thank you to everyone, and here's to looking to the future and hoping to less seizures once bloodwork comes back!
:clap:
Mike
I have seizures! and a mild form of PNES.
The new neuro actually listen and is looking at over 300 plus papers I brought in of med records and my seizure journal, and listened to me and my wife and my kids that are old enough to talk about what happens to me when I have my seizures.
He's ordering med level blood work and when that comes back he plans on upping my keppra to 750 2x daily and maybe lowering my topamax and maybe adding something new to the mix, ordering a MRI for paresthesia and to look for lesions on my brain since my legs and hands go numb all the time and going to help with my back pain also.
He's going to help out more than my last one Thnak youall for helping out and telling me to get a 2nd opinion pushing me to keep a detail journal even if I thought it was small or stupid.
I did forget to tell him some things since I did have my kids but he did listen and got the jist of things and more will be said in future appointments, and he looked over my 17 year old med record from my bicycle accident and chose to use that as a deciding factor as a starting factor as you have seizures and the MRI may help him decide if I have E since my brother has E as well and he's going to use the MRI to rule out MS as well.
So thank you to everyone, and here's to looking to the future and hoping to less seizures once bloodwork comes back!
:clap:
Mike