EdenFox
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Hiya,
I was officially diagnosed about five years ago when I had my first Grand Maul , I have Myoclonic and Absence seizures and have had those since I was five. I have a Grand Maul 2-4 times a month it use to be even worse, was every week sometimes a few days in a row. I'm bad with introductions not sure what to say but there is something I really wanted to know about.
I was wondering if anyone else noticed or had problems with their social life while coping with Epilepsy. I use to go out all the time and my mates would always keep me in the loop for anything going on. I had a few seizures in front of a few mates and ever since I feel like they avoid going out with me. There was also a lot of times I couldn't make it to events or a party because I was having Auras that day or just really sick, I"m sick a lot since my seizures are sill not controlled and my meds keep changing. Of course I am limited to things as well now, the driving, drinking, clubing and such. I have a tight circle of friends and I would hear that there is something going on and I would be asked if I was going and I would always be the only one left out of the loop or just not invited.
This never bothered me before but It has been going on for over a year now and I'm thinking back realising that my mates that I have been so close to for over a decade have been gradually avoiding me. I didn't even think this until someone slipped that I was asked not to be invited.
Does anyone get this a lot? Are people just scared because they don't understand it?
I never felt this way I always felt wanted and loved by my mates and family, but now I feel shunned and Isolated. My Sister will no longer speak to me because she thinks i'm doing all this for attention, Seriously ? it does the opposite!! why would I want that it is super embarrassing too!! Even my Mum didn't take it seriously until one day I had a Grand Maul Seizure at the Health Centre and then she really saw what was going on with me.
I am scared now because this deep depression has seeped into me and I don't' know how to deal with it. I honestly have so many days that i'm just too exhausted to try anymore.
I would love to know what others have experienced and what you have done about it. Does it get easier to cope ?
I am tryin to remain strong and Positive but I realise that i need to talk to someone and educate myself on living with Epilepsy instead of just acting like everything is fine and not speaking out about how I feel.
CHEERS@
I was officially diagnosed about five years ago when I had my first Grand Maul , I have Myoclonic and Absence seizures and have had those since I was five. I have a Grand Maul 2-4 times a month it use to be even worse, was every week sometimes a few days in a row. I'm bad with introductions not sure what to say but there is something I really wanted to know about.
I was wondering if anyone else noticed or had problems with their social life while coping with Epilepsy. I use to go out all the time and my mates would always keep me in the loop for anything going on. I had a few seizures in front of a few mates and ever since I feel like they avoid going out with me. There was also a lot of times I couldn't make it to events or a party because I was having Auras that day or just really sick, I"m sick a lot since my seizures are sill not controlled and my meds keep changing. Of course I am limited to things as well now, the driving, drinking, clubing and such. I have a tight circle of friends and I would hear that there is something going on and I would be asked if I was going and I would always be the only one left out of the loop or just not invited.
This never bothered me before but It has been going on for over a year now and I'm thinking back realising that my mates that I have been so close to for over a decade have been gradually avoiding me. I didn't even think this until someone slipped that I was asked not to be invited.
Does anyone get this a lot? Are people just scared because they don't understand it?
I never felt this way I always felt wanted and loved by my mates and family, but now I feel shunned and Isolated. My Sister will no longer speak to me because she thinks i'm doing all this for attention, Seriously ? it does the opposite!! why would I want that it is super embarrassing too!! Even my Mum didn't take it seriously until one day I had a Grand Maul Seizure at the Health Centre and then she really saw what was going on with me.
I am scared now because this deep depression has seeped into me and I don't' know how to deal with it. I honestly have so many days that i'm just too exhausted to try anymore.
I would love to know what others have experienced and what you have done about it. Does it get easier to cope ?
I am tryin to remain strong and Positive but I realise that i need to talk to someone and educate myself on living with Epilepsy instead of just acting like everything is fine and not speaking out about how I feel.
CHEERS@
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