Elaine H
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I may have mentioned recently on CWE, my recent altercation with my hairdryer, I just wanted to give you something to think about.
I am possibly facing reconstructive surgery on my right hand and fingers, but have an infection in the wounds, so will have to wait and see.
I have been thinking about that day a lot recently, and the fact that one minute I sat there drying my hair, and the next I knew, I was downstairs, in the kitchen, making toast before I looked down at my hand and suddenly thought, wow, that looks bad, then, the pain kicked in, then, the realisation as to what had happened, and the panic that ensued. How terrifying is that, to have absolutely no idea whatsoever, no warning,to feel no pain, to sit there, fingers wrapped tightly around the end of a scorching hot dryer for God only knows how long?!!
What I wanted to point out here too, is that one of the drugs that I am on Trileptal/Oxcarbazepine, which I take specifically for Simple Partials/auras, has completely stopped all of my terrifying SP/auras, great, but, I now don't have a clue when I am in "wobbly mode" so I am stuck now between a rock and a hard place eh? I have always said that the auras were the most terrifying part of having epilepsy for me, I could highly recommend this drug for anyone out there that has, like myself, bad auras and SP's, it has been a phenomenal anti-convulsant, Trileptal/Oxcarbazepine. I have not really had side effects with it, and I take it with Keppra, again, luckily no real side effects.
All I really wanted to say here, was, when you dry your hair ladies, and gents I guess, think about it, how you are sitting, what skin you have exposed, is there anyone in the house with you, are you feeling wobbly, it has happened to me now, three times, with scars on my right calf, right breast, and now, my right hand, food for thought maybe, I just wouldn't want any one of you, to go through the most excruciating pain that I went through, I cannot begin to describe it, and would rather have brain surgery for a third time!! I've been advised to make sure Mark is around when I dry my hair now, and to be honest, I am terrified whenever I dry my hair, I've thrown the old dryer out, and now have a newer model, I pray to God that it doesn't happen again, maybe I should get my head shaved, and I am thinking of investing in a dryer that automatically switches off when dropped, there are some out there that are designed for us guys with epilepsy.
Hope 2010 going ok for you all, I am working hard on the book, and have a few things lined up for National Epilepsy Week here in the UK, lets all keep positive, and keep waving that proverbial flag, most of all, as I told Jamie my latest friend to be diagnosed with epilepsy, hold your head up, and do not be ashamed to simply be... a person with epilepsy, it's no big deal!!! :clap:
Lotsalove
Lainey xxxxxxxx
I am possibly facing reconstructive surgery on my right hand and fingers, but have an infection in the wounds, so will have to wait and see.
I have been thinking about that day a lot recently, and the fact that one minute I sat there drying my hair, and the next I knew, I was downstairs, in the kitchen, making toast before I looked down at my hand and suddenly thought, wow, that looks bad, then, the pain kicked in, then, the realisation as to what had happened, and the panic that ensued. How terrifying is that, to have absolutely no idea whatsoever, no warning,to feel no pain, to sit there, fingers wrapped tightly around the end of a scorching hot dryer for God only knows how long?!!
What I wanted to point out here too, is that one of the drugs that I am on Trileptal/Oxcarbazepine, which I take specifically for Simple Partials/auras, has completely stopped all of my terrifying SP/auras, great, but, I now don't have a clue when I am in "wobbly mode" so I am stuck now between a rock and a hard place eh? I have always said that the auras were the most terrifying part of having epilepsy for me, I could highly recommend this drug for anyone out there that has, like myself, bad auras and SP's, it has been a phenomenal anti-convulsant, Trileptal/Oxcarbazepine. I have not really had side effects with it, and I take it with Keppra, again, luckily no real side effects.
All I really wanted to say here, was, when you dry your hair ladies, and gents I guess, think about it, how you are sitting, what skin you have exposed, is there anyone in the house with you, are you feeling wobbly, it has happened to me now, three times, with scars on my right calf, right breast, and now, my right hand, food for thought maybe, I just wouldn't want any one of you, to go through the most excruciating pain that I went through, I cannot begin to describe it, and would rather have brain surgery for a third time!! I've been advised to make sure Mark is around when I dry my hair now, and to be honest, I am terrified whenever I dry my hair, I've thrown the old dryer out, and now have a newer model, I pray to God that it doesn't happen again, maybe I should get my head shaved, and I am thinking of investing in a dryer that automatically switches off when dropped, there are some out there that are designed for us guys with epilepsy.
Hope 2010 going ok for you all, I am working hard on the book, and have a few things lined up for National Epilepsy Week here in the UK, lets all keep positive, and keep waving that proverbial flag, most of all, as I told Jamie my latest friend to be diagnosed with epilepsy, hold your head up, and do not be ashamed to simply be... a person with epilepsy, it's no big deal!!! :clap:
Lotsalove
Lainey xxxxxxxx