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Hi,
I posted my current dilemma last night which was lost with the server transfer so I wanted to repost since I feel like I am going insane from this drug. I have been on Topamax for two years. I started feeling hte cognitive side effects immediately. Basically was unable to get out what I was thinking, read that it was temporary, body would adjust, never did....eventually got worst, started feeling like my mind was congested. Got even worse, lost my job, insurance. Was therefore stuck on Topamax because my neuro (topa-pimp) would give me samples and got me on the patient assistance program. She insisted that she never heard of these cognitive side effects even when I would tell her that I had seen them posted all over the internet. I asked her numerous times to take me off and put me on another. Since i was insurance-less, I needed her assistance in getting me on another patient-assistance program. She gave me Exelon (what they give to people with Alzheimer's/dimentia). Finally just told her to write me a script for Keppra and am charging it on my credit card. The decay of my mind is so bad now that I feel like I am going insane. I am decreasing the Topamax 25 mg every 5 days and won't be completely off for almost 2 months. Questions: how long does it take to get out of your system? After I take last pill. I read somewhere that 20% of Topamax users experience the cognitive side effects. Some have said they feel like getting off TM was like coming out of fog, some have said they never recovered. I am scared I will not ever get my mind back. Anybody who has experienced this and has anything to add, please help. I can't remember things...recent things, names, places, friends. If I could I would stop cold turkey but I am scared of the consequences. Scared all over, don't know where to go or turn and the fact that I have no insurance doesn't make it easier. I just want to feel like I will one day be back to my old self.
I posted my current dilemma last night which was lost with the server transfer so I wanted to repost since I feel like I am going insane from this drug. I have been on Topamax for two years. I started feeling hte cognitive side effects immediately. Basically was unable to get out what I was thinking, read that it was temporary, body would adjust, never did....eventually got worst, started feeling like my mind was congested. Got even worse, lost my job, insurance. Was therefore stuck on Topamax because my neuro (topa-pimp) would give me samples and got me on the patient assistance program. She insisted that she never heard of these cognitive side effects even when I would tell her that I had seen them posted all over the internet. I asked her numerous times to take me off and put me on another. Since i was insurance-less, I needed her assistance in getting me on another patient-assistance program. She gave me Exelon (what they give to people with Alzheimer's/dimentia). Finally just told her to write me a script for Keppra and am charging it on my credit card. The decay of my mind is so bad now that I feel like I am going insane. I am decreasing the Topamax 25 mg every 5 days and won't be completely off for almost 2 months. Questions: how long does it take to get out of your system? After I take last pill. I read somewhere that 20% of Topamax users experience the cognitive side effects. Some have said they feel like getting off TM was like coming out of fog, some have said they never recovered. I am scared I will not ever get my mind back. Anybody who has experienced this and has anything to add, please help. I can't remember things...recent things, names, places, friends. If I could I would stop cold turkey but I am scared of the consequences. Scared all over, don't know where to go or turn and the fact that I have no insurance doesn't make it easier. I just want to feel like I will one day be back to my old self.