Divine Euphoria
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I know that it has been awhile since you started this thread and I just wanted to offer you a virtual hug.
I am currently going through something similar right now. I have been doing some research and have found something which I consider to be good advice.
I will copy some of it onto here. The information is what someone has posted on the forum of the website epilepsy.com
"Re: Can someone tell me how to live with Undiagnosed seizures?
Submitted by snowwoman on Sat, 2011-02-26 22:48
Churk,
I read your previous post about subtle seizure signs as well.
I struggled with undiagnosed symptoms for a few years. One of my problems were myoclonic jerking. At one point, I myself suspected epilepsy, but never brought it up because it seemed weird and my symptoms did not complete fit.
I went on with life, and continued to keep a watch on my health. You need to as well.
Fearing and worrying, and cooping yourself at home is NOT going to help you. It won't help you in getting help from others (because people will think you are paranoid), it won't help you get a diagnosis (because doctors will roll their eyes at you) and it won't help you have a life. The more you stress about them happening, the more they will happen.
I know you want a diagnosis, and maybe even desparately want it. But here's a tip. The more you walk into a doctor's office and insist you have epilepsy, the more they won't listen to you. Because 1) there are a lot of people who think they have some condition and try and self-diagnose, and 2) doctors have egos.
Get on with your life, in every single way that you can. Get a job, or go back to school, whichever you like. So what if you have a seizure there? The more people who see it, the more someone can vouch as your eye witness.
I eventually got my diagnosis when I had a seizure in school and my classmate and instructor both saw it and could vouch for it. My doc who has known me as someone who's outgoing, headstrong, active, refuse-to-be-sick person etc said "it's epilepsy" and referred me straight to an epilepsy specialist. I doubt I would have gotten that diagnosis if I had always gone in and said at every visit that I have epilepsy.
In the meantime, as much as possible, avoid things you feel will provoke your seizures. But DON'T avoid life."
I am glad I read that person's post on that website.
You should still try to reach out though to people in the medical profession to talk to them and try to get some support.
I know that I have to as the last seizure-like event I had tripped out my moods and I started to go from a state of euphoria (downloading the entire universe into my tiny human brain) to confusion then to depression then to a weird mixed agitated state that hovered on the edge of the state I was in before the event happened.
The state I think I was in before the event happened was a dreamy detached state which I think had slowly built up over the past week or so before.
I am currently going through something similar right now. I have been doing some research and have found something which I consider to be good advice.
I will copy some of it onto here. The information is what someone has posted on the forum of the website epilepsy.com
"Re: Can someone tell me how to live with Undiagnosed seizures?
Submitted by snowwoman on Sat, 2011-02-26 22:48
Churk,
I read your previous post about subtle seizure signs as well.
I struggled with undiagnosed symptoms for a few years. One of my problems were myoclonic jerking. At one point, I myself suspected epilepsy, but never brought it up because it seemed weird and my symptoms did not complete fit.
I went on with life, and continued to keep a watch on my health. You need to as well.
Fearing and worrying, and cooping yourself at home is NOT going to help you. It won't help you in getting help from others (because people will think you are paranoid), it won't help you get a diagnosis (because doctors will roll their eyes at you) and it won't help you have a life. The more you stress about them happening, the more they will happen.
I know you want a diagnosis, and maybe even desparately want it. But here's a tip. The more you walk into a doctor's office and insist you have epilepsy, the more they won't listen to you. Because 1) there are a lot of people who think they have some condition and try and self-diagnose, and 2) doctors have egos.
Get on with your life, in every single way that you can. Get a job, or go back to school, whichever you like. So what if you have a seizure there? The more people who see it, the more someone can vouch as your eye witness.
I eventually got my diagnosis when I had a seizure in school and my classmate and instructor both saw it and could vouch for it. My doc who has known me as someone who's outgoing, headstrong, active, refuse-to-be-sick person etc said "it's epilepsy" and referred me straight to an epilepsy specialist. I doubt I would have gotten that diagnosis if I had always gone in and said at every visit that I have epilepsy.
In the meantime, as much as possible, avoid things you feel will provoke your seizures. But DON'T avoid life."
I am glad I read that person's post on that website.
You should still try to reach out though to people in the medical profession to talk to them and try to get some support.
I know that I have to as the last seizure-like event I had tripped out my moods and I started to go from a state of euphoria (downloading the entire universe into my tiny human brain) to confusion then to depression then to a weird mixed agitated state that hovered on the edge of the state I was in before the event happened.
The state I think I was in before the event happened was a dreamy detached state which I think had slowly built up over the past week or so before.