Hi!
My name is Jen and I live in LA with my husband, my 5 year old son and my 4 month old daughter.
My son has been diagnosed with epileptic spasms at 4.5 years old. They are similar to infantile spasms but occur later in life, not in infancy. He also has slow spike-and-wave in sleep seizures and discharges thorugh the day. He was originally diagnosed with autism as he has behaviors on the spectrum. He is currently on Depakote, Zonisamide and Topamax.
I am just seeing if there are any other parents out there who have experience with this. He currently is seen by pediatric neurologists at UCLA but they don't have much information for us other than we need to aggressively treat his seizures and keep monitoring them to see if they evolve into Lennox Gastaut. If anyone has any suggestions - medication or otherwise, I would greatly apprecate it.
Thanks!
My name is Jen and I live in LA with my husband, my 5 year old son and my 4 month old daughter.
My son has been diagnosed with epileptic spasms at 4.5 years old. They are similar to infantile spasms but occur later in life, not in infancy. He also has slow spike-and-wave in sleep seizures and discharges thorugh the day. He was originally diagnosed with autism as he has behaviors on the spectrum. He is currently on Depakote, Zonisamide and Topamax.
I am just seeing if there are any other parents out there who have experience with this. He currently is seen by pediatric neurologists at UCLA but they don't have much information for us other than we need to aggressively treat his seizures and keep monitoring them to see if they evolve into Lennox Gastaut. If anyone has any suggestions - medication or otherwise, I would greatly apprecate it.
Thanks!