Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
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Hi Arzu, welcome to the forum. :hello:
There is another member here with a child with Dravet's Syndrome:
http://www.coping-with-epilepsy.com/forums/f23/dravet-syndome-3104/
There is another member here with a child with Dravet's Syndrome:
http://www.coping-with-epilepsy.com/forums/f23/dravet-syndome-3104/
stilldancing_98
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Hi Alara, it is tough huh? Welcome here. The only thing I can tell you is that my son has the myoclonic seizures with regression and delay.One kidney,his seizures seem to be changing. He did not talk until he was 4 and full sentances until he was six. He then regressed and relearned.He is 9 now and has more testing to do.I so know how tough this is.I am with you all the way.