Hi there, I am new to this forum. First a little history, by the way I do not have epilepsy but my children and brother do.
My brother was diagnosed when he was about 10 years, he is now 22, I am not sure of his dosage but he is on Epilim (Sodium Valproate) and Lamictal. I am actually 39, my brother was born when I was 16, I have a sister who is 38, she does not have epilepsy.
My Son was diagnosed when he was about 12, he is now 21, he is on 1000 mg of Epilim daily and 200mg of Lamictal daily.
My daughter was diagnosed at the beginning of this year, she is 18 years old, turning 19 in about a week. She has only had 2 seizures, but is on Epilim.
In the beginning I had no idea what was going on with my son as he had petit mals. But at the time I was unsure what was happening as he would just stop what he was doing and he looked like he was daydreaming. As it was happening many times a day I finally took him to the doctors and the epilepsy was diagnosed, it was not until he started taking the meds that the grand mal seizures started. Over the years we have finally got it under control (I hope) he has been siezure free since Feb 08, his medication amounts were being changed at the time of his last seizure
.
As for my daughter, she was at home (she lives with her boyfriend) in bed when she had her first one, no one can really tell me anything as she was the only one in the room at the time, Her boyfriend found her on the bed and knew that something was wrong.
I guess I am just after a few answers or opinions from anyone.
Why would my daughters epilepsy only show itself now after so many years.?
Is it possible for myself to carry the gene but not have epilepsy?
I sort of figured that it is all on my side of the family as my brother and my two children have it (No sign of it in my sisters children - YET)
I am divorced from my first husband (father to my children) and have remarried. My husband and I are trying to have a baby, we are going through IVF as my tubes are tied and we have a better chance with IVF.
I am worried that I may pass on the gene to any other children that I may have. I have told my Fertility Doc about the epilepsy but he does not seem to concerned. Is it just luck of the draw???
Thanks in advance for any advice.
Louise
My brother was diagnosed when he was about 10 years, he is now 22, I am not sure of his dosage but he is on Epilim (Sodium Valproate) and Lamictal. I am actually 39, my brother was born when I was 16, I have a sister who is 38, she does not have epilepsy.
My Son was diagnosed when he was about 12, he is now 21, he is on 1000 mg of Epilim daily and 200mg of Lamictal daily.
My daughter was diagnosed at the beginning of this year, she is 18 years old, turning 19 in about a week. She has only had 2 seizures, but is on Epilim.
In the beginning I had no idea what was going on with my son as he had petit mals. But at the time I was unsure what was happening as he would just stop what he was doing and he looked like he was daydreaming. As it was happening many times a day I finally took him to the doctors and the epilepsy was diagnosed, it was not until he started taking the meds that the grand mal seizures started. Over the years we have finally got it under control (I hope) he has been siezure free since Feb 08, his medication amounts were being changed at the time of his last seizure
.
As for my daughter, she was at home (she lives with her boyfriend) in bed when she had her first one, no one can really tell me anything as she was the only one in the room at the time, Her boyfriend found her on the bed and knew that something was wrong.
I guess I am just after a few answers or opinions from anyone.
Why would my daughters epilepsy only show itself now after so many years.?
Is it possible for myself to carry the gene but not have epilepsy?
I sort of figured that it is all on my side of the family as my brother and my two children have it (No sign of it in my sisters children - YET)
I am divorced from my first husband (father to my children) and have remarried. My husband and I are trying to have a baby, we are going through IVF as my tubes are tied and we have a better chance with IVF.
I am worried that I may pass on the gene to any other children that I may have. I have told my Fertility Doc about the epilepsy but he does not seem to concerned. Is it just luck of the draw???
Thanks in advance for any advice.
Louise