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Someone recomended this site to me because I like help from regular people (not drs) who know and understand what you are going through. I also appericate the help that they can give me.
About 7 years ago I had a grand mal sez out of no where. Luckily I was staying at my boyfriend's (at the time) house. I woke him up in the middle of the night shaking in the bed. He rushed me to the hospital where I had to be put into a medicaly induced coma to get the sez to stop.
The neuro still has no idea what caused the sez, and why I'm still having them.
I was in the hospital for about 6 weeks before they released me. I was still having alot of sez a month.
I had a ton of memory loss. About 10 years of my life were gone after I got out of the hospital and after every sez I wouldn't remember things that had happend days to weeks before it.
I have focal sezs now, which aren't as bad.
My doctor put me on a ton of meds. I got a VNS implant which has greatly reduced the ammount of sez I have. I usually only have about one a month, but I do have what I would call mini sezs where the room won't seem right or I get dizzy feelings and can't think straight.
I am still on alot of meds with the VNS implant (which I got about 2 years ago), but the neuro is trying to reduce the dosages that I take.
I currently take Divalproex SOD ER 500mg TAMYL, Carbamazepine XR 400mg Tabtar, Levetriacetam 750mg TABLETMYL, Lamotrigine 150mg Tablet MYL, and Lamotrigine 25mg Tablet.
Usually after I have a bad sez I have a horrible migrane headache which the neruo also gave me medicine for that too.
I still have a ton of memory loss. I joke that when the repeats of tv shows come on in the summer they are all new to me because I don't remember how they end. I also asked my dad for about four weeks straight where a certain grocery store was because when their flyer came in the mail it had good sales. Most things that happened over a year ago are gone, and some things that happened sooner than that are gone too.
Luckily my friends and family are very understanding about this and will take the time to tell me about what I forgot.
I can't drive and live out in the country so I have to rely on family and friends to get me around. I feel bad about this but not one time has anyone said anything to me about having to be my personial taxi service.
I am currently living with my boyfriend that I met a little over a year after having the firse sez. He knows what I've gone through and has been there for most of it now. He knows when a sez is coming on (I usually don't) and will make sure that I am somewhere ok so that I don't hurt myself.
I don't know if this is alot or too much but I want people to know what is going on with me so that maybe they can relate to it and ask me questions or I can ask them questions and try to help each other.
I look forward to posting on this website and hope I can get help with everything, it's going to be nice to meet you all!
About 7 years ago I had a grand mal sez out of no where. Luckily I was staying at my boyfriend's (at the time) house. I woke him up in the middle of the night shaking in the bed. He rushed me to the hospital where I had to be put into a medicaly induced coma to get the sez to stop.
The neuro still has no idea what caused the sez, and why I'm still having them.
I was in the hospital for about 6 weeks before they released me. I was still having alot of sez a month.
I had a ton of memory loss. About 10 years of my life were gone after I got out of the hospital and after every sez I wouldn't remember things that had happend days to weeks before it.
I have focal sezs now, which aren't as bad.
My doctor put me on a ton of meds. I got a VNS implant which has greatly reduced the ammount of sez I have. I usually only have about one a month, but I do have what I would call mini sezs where the room won't seem right or I get dizzy feelings and can't think straight.
I am still on alot of meds with the VNS implant (which I got about 2 years ago), but the neuro is trying to reduce the dosages that I take.
I currently take Divalproex SOD ER 500mg TAMYL, Carbamazepine XR 400mg Tabtar, Levetriacetam 750mg TABLETMYL, Lamotrigine 150mg Tablet MYL, and Lamotrigine 25mg Tablet.
Usually after I have a bad sez I have a horrible migrane headache which the neruo also gave me medicine for that too.
I still have a ton of memory loss. I joke that when the repeats of tv shows come on in the summer they are all new to me because I don't remember how they end. I also asked my dad for about four weeks straight where a certain grocery store was because when their flyer came in the mail it had good sales. Most things that happened over a year ago are gone, and some things that happened sooner than that are gone too.
Luckily my friends and family are very understanding about this and will take the time to tell me about what I forgot.
I can't drive and live out in the country so I have to rely on family and friends to get me around. I feel bad about this but not one time has anyone said anything to me about having to be my personial taxi service.
I am currently living with my boyfriend that I met a little over a year after having the firse sez. He knows what I've gone through and has been there for most of it now. He knows when a sez is coming on (I usually don't) and will make sure that I am somewhere ok so that I don't hurt myself.
I don't know if this is alot or too much but I want people to know what is going on with me so that maybe they can relate to it and ask me questions or I can ask them questions and try to help each other.
I look forward to posting on this website and hope I can get help with everything, it's going to be nice to meet you all!
Feel free to chime in, ask questions, etc...