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Hi! My name is Shannon and I have recently been diagnosed with Epilepsy(complex-partial seizures). I feel like the diagnoses could be wrong, mainly because my symptoms seem to be slightly different than what some of the definitions state.
These began about 2 1/2 years ago, after the birth of my 2nd child. They happened mainly while driving. I would get this deja vu/ jamais vu feeling, but I would not lose consciousness. I just felt really wierd. It would pass in a few seconds.
As time has gone on, they have progressed to where I know completely black-out/ faint. I get the same deja vu/ jamais vu sensation, which I am told by neurologists is an aura, and I quick have to go to lay down because I know I'm going to pass out. When I pass out, I feel as if I'm in a dream-like state, not aware of anything around me really, but aware of something. Sometimes I "dream" but do not recall what I dreamed about when the episode is over. I feel like I'm out for just a few seconds, which from those who've seen it happen say the same. Nobody has seen me make the automasims that some talk about, like lip-smacking, etc.
I had an EEG done about a month ago and it was normal, as well as an MRI a couple weeks ago, which was also normal. The dr's tell me roughly 50% of people diagnosed with Epilepsy have no cause involved, that is, show no signs of why this is occuring. They just go based on the symptoms patients tell them.
I am pregnant with my 3rd (and last!) child and the neurologists want me to begin taking Dilantin until I have the baby, then switch to Tegratol, which they say is best for complex-partial seizures. I have so far refused to take the meds for fear of side effects/ long-term implications. I would much appreciate feedback on this.
One of the neurologists said taking a magnesium supp wouldn't hurt, so I began taking 250 mg about 2 weeks ago. I didn't have any episodes for about a week, but they started up again about 4 days ago.
One thing that I find strange is all of my episodes generally begin in the bathroom when I am getting out of the shower. They also occur at night when I get my kids out of the shower. I'd say 95% of them begin in either of these 2 ways. I have not had one while driving in about 2 years, but have had one while walking in the mall (fell down when I passed out) and recently 2 in my sleep (they did wake me up and I had the uneasy feeling I always have after they're over).
So, that's my story. I hope to learn a lot on here and would appreciate any advice/opinions/stories from anybody who experiences similar happenings. Thanks!
Shannon
These began about 2 1/2 years ago, after the birth of my 2nd child. They happened mainly while driving. I would get this deja vu/ jamais vu feeling, but I would not lose consciousness. I just felt really wierd. It would pass in a few seconds.
As time has gone on, they have progressed to where I know completely black-out/ faint. I get the same deja vu/ jamais vu sensation, which I am told by neurologists is an aura, and I quick have to go to lay down because I know I'm going to pass out. When I pass out, I feel as if I'm in a dream-like state, not aware of anything around me really, but aware of something. Sometimes I "dream" but do not recall what I dreamed about when the episode is over. I feel like I'm out for just a few seconds, which from those who've seen it happen say the same. Nobody has seen me make the automasims that some talk about, like lip-smacking, etc.
I had an EEG done about a month ago and it was normal, as well as an MRI a couple weeks ago, which was also normal. The dr's tell me roughly 50% of people diagnosed with Epilepsy have no cause involved, that is, show no signs of why this is occuring. They just go based on the symptoms patients tell them.
I am pregnant with my 3rd (and last!) child and the neurologists want me to begin taking Dilantin until I have the baby, then switch to Tegratol, which they say is best for complex-partial seizures. I have so far refused to take the meds for fear of side effects/ long-term implications. I would much appreciate feedback on this.
One of the neurologists said taking a magnesium supp wouldn't hurt, so I began taking 250 mg about 2 weeks ago. I didn't have any episodes for about a week, but they started up again about 4 days ago.
One thing that I find strange is all of my episodes generally begin in the bathroom when I am getting out of the shower. They also occur at night when I get my kids out of the shower. I'd say 95% of them begin in either of these 2 ways. I have not had one while driving in about 2 years, but have had one while walking in the mall (fell down when I passed out) and recently 2 in my sleep (they did wake me up and I had the uneasy feeling I always have after they're over).
So, that's my story. I hope to learn a lot on here and would appreciate any advice/opinions/stories from anybody who experiences similar happenings. Thanks!
Shannon
