Hi there everone.
Just a little background on myself I was diagnosed in mid twenties due to status. Then having 90 seizures a month both TC's and Cplx seizures hope acronyms correct. Moved home changed GP . After her help and referrals and addition of Keppra that cut number of seizures in halve straight away best of all decreased TC's and that made life so much easier for others as well as myself as I am a carer for my husband after brain haemorrhage and stoke. My meds now 3500 Keppra, 800 Carbamazepine, 400Lamictal (and 30mg Frisium when cplx seizures get stuck) memory not so good so just checked dosage package usual side effects very tired and memory not so good. Best of all about fifteen months ago went down to just one yes one TC in twelve months and about 2-3cplx sezures a month thought it was my Birthday little uncomforable kept waiting for them to happen yet absolutely wonderful and preferrable and felt so much more confident. Then had D&V for couple of days afterwards seizures up to 10-20 cplx week yet still only TC’s 3-4 month so Consultant increased Keppra no difference . Flight home from Cuba (end of November) seizures went on over seven hour period some quite long nearly diverted to Canada but very fortunate to have A&E sister and med link on board so given me lots of meds etc. and med link (then hospital)I felt very lucky they were there but sorry for them. Decided to stick to short haul flights over large expanses of land in future not fair to divert a plane load of passengers and my lovely Gp with humour insists that Cornwall is lovely. She decided to increase tegretol as still felt unwell but put cause down to D&V, sezure earlier in day ,delayed night flight and start of cold recipe for disaster. Lost a few brain cells which you definitely I need at 50+ as unable to remember hols for about two weeks.. At present about 4 TC’s a month and little ones keep getting stuck so taking Clobazam to stop these so not sure of the number of Cplx more than 10 a week and GP thinks I am having sub clinical ones as well. This is like a book sorry folks. Wondered if anyone can help me usually feel upbeat and confident since being so well about twelve months ago now know that I not like others and confidence is much lower than before definitely used to cope with them much with TC’s that happen outside my memory and tireness is a problem and as my husband more disabled than I am he also has memory, sight, walking, orientation and unable to look after himself it can be a little bit of a struggle but he is a lovely man and I want to repay the kindness over the years. I have lots of things to be really grateful for but am tired very tearful and unconfident about going out not like the usual me at all. Not used to talking to others about problems so BIG APOLOGY but wondered if anyone had any practical advise as this would be really helpful. Thank you for reading this.
Just a little background on myself I was diagnosed in mid twenties due to status. Then having 90 seizures a month both TC's and Cplx seizures hope acronyms correct. Moved home changed GP . After her help and referrals and addition of Keppra that cut number of seizures in halve straight away best of all decreased TC's and that made life so much easier for others as well as myself as I am a carer for my husband after brain haemorrhage and stoke. My meds now 3500 Keppra, 800 Carbamazepine, 400Lamictal (and 30mg Frisium when cplx seizures get stuck) memory not so good so just checked dosage package usual side effects very tired and memory not so good. Best of all about fifteen months ago went down to just one yes one TC in twelve months and about 2-3cplx sezures a month thought it was my Birthday little uncomforable kept waiting for them to happen yet absolutely wonderful and preferrable and felt so much more confident. Then had D&V for couple of days afterwards seizures up to 10-20 cplx week yet still only TC’s 3-4 month so Consultant increased Keppra no difference . Flight home from Cuba (end of November) seizures went on over seven hour period some quite long nearly diverted to Canada but very fortunate to have A&E sister and med link on board so given me lots of meds etc. and med link (then hospital)I felt very lucky they were there but sorry for them. Decided to stick to short haul flights over large expanses of land in future not fair to divert a plane load of passengers and my lovely Gp with humour insists that Cornwall is lovely. She decided to increase tegretol as still felt unwell but put cause down to D&V, sezure earlier in day ,delayed night flight and start of cold recipe for disaster. Lost a few brain cells which you definitely I need at 50+ as unable to remember hols for about two weeks.. At present about 4 TC’s a month and little ones keep getting stuck so taking Clobazam to stop these so not sure of the number of Cplx more than 10 a week and GP thinks I am having sub clinical ones as well. This is like a book sorry folks. Wondered if anyone can help me usually feel upbeat and confident since being so well about twelve months ago now know that I not like others and confidence is much lower than before definitely used to cope with them much with TC’s that happen outside my memory and tireness is a problem and as my husband more disabled than I am he also has memory, sight, walking, orientation and unable to look after himself it can be a little bit of a struggle but he is a lovely man and I want to repay the kindness over the years. I have lots of things to be really grateful for but am tired very tearful and unconfident about going out not like the usual me at all. Not used to talking to others about problems so BIG APOLOGY but wondered if anyone had any practical advise as this would be really helpful. Thank you for reading this.
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