ladyfuller
New
- Messages
- 6
- Reaction score
- 0
- Points
- 0
hello my husband has been having seizues for over 10 years and they have progressivly gotten worse over the past 15 months (around the time our son was born). before that he was seizure free for 11 months. he was on dilantin for like 8 years and he started feeling depressed and somebody told us it was the meds so we went to a new neuro(what a mistake side effects just dont show up after 8 years of taking a med) we told the doc he was still having break through seizures and that he was not into the things that he used to be (dirtbike riding working on cars etc.) we had become distant from our friends(since i have been with shawn alot of my friends dont like to come around they say he is an a** but i know it is not him but his seizure) and he was distant from our new born son and knew that he should be bonding with him and that made him more depressed.
so the doc put him on kepra (start at 1 in the am and 1 in the pm and once a wek add 1 more to am and pm and ween himself off the dilantin until he was up to 3 keppra 2Xs daily) so we did that and they did an eeg and found abnormal activity on the left side right above his ear. didnt give a diagnosis and didnt even call to tell us.
shawn started having break through sezures after stoppin his dilantin starting a couple days before thanksgiving...he had been on the keppra for a couple weeks, two weekends ago he had 4 clonic tonic seizures and we had to send him to the hospital(the doc at the hospital didnt know anything about status epilepticus) and sent him home that monday we went to his neuro and shawn had been feeling funny all weekend and was actually having absence seizures and we didnt even know it all weekend so the doc put him back on his dilantin and told him after 3 days of starting his dilantin again to drop 1 of the keppra 2Xs daily and to come back to see him. shawn was almost freaking out he was grbbing the chair and shaking and screaming and telling this doc that something was wrong and this doc rolled his eyes at shawn and told him he would be fine if he started the dilantin again....
we went home and shawn was stil not feeling right 2 days later we went to the hospital saw the same er doc he had seen the week before and she said she was not een comfortable sending him home that past friday. she sent us out to harborview medical center and we spent the night the weened shawn off the keppra and upped his dilantin level (until the meds were theraputic in his blood) and started him on pregobolin(idk how to spell it) it seems to have helped he is slowly getting back to himself agin we are laughing more and getting along better.
i was so affraid that we were gonna seperate because he was targeting me when he would get upset and in those "kepprage" moods and it was tearing us apart. we now are trying to deal with this but we are so scared we recently met a pharmasist that had a best friend that had epilepsy and died at 36. he had a similar life experiances as shawn (my hubby) and i am so scared that we are not going to spend the rest of our lives togeather and he wont beabel to watch our son grow up. im also scared that i cant deal with all of his upset episodes and how much he has changed i love him more than anything and i just want to help him get through this so he can be shawn again i feel like me talking to him and trying to help him is just making things worse....thnak you for reding if you read it all
so the doc put him on kepra (start at 1 in the am and 1 in the pm and once a wek add 1 more to am and pm and ween himself off the dilantin until he was up to 3 keppra 2Xs daily) so we did that and they did an eeg and found abnormal activity on the left side right above his ear. didnt give a diagnosis and didnt even call to tell us.
shawn started having break through sezures after stoppin his dilantin starting a couple days before thanksgiving...he had been on the keppra for a couple weeks, two weekends ago he had 4 clonic tonic seizures and we had to send him to the hospital(the doc at the hospital didnt know anything about status epilepticus) and sent him home that monday we went to his neuro and shawn had been feeling funny all weekend and was actually having absence seizures and we didnt even know it all weekend so the doc put him back on his dilantin and told him after 3 days of starting his dilantin again to drop 1 of the keppra 2Xs daily and to come back to see him. shawn was almost freaking out he was grbbing the chair and shaking and screaming and telling this doc that something was wrong and this doc rolled his eyes at shawn and told him he would be fine if he started the dilantin again....
we went home and shawn was stil not feeling right 2 days later we went to the hospital saw the same er doc he had seen the week before and she said she was not een comfortable sending him home that past friday. she sent us out to harborview medical center and we spent the night the weened shawn off the keppra and upped his dilantin level (until the meds were theraputic in his blood) and started him on pregobolin(idk how to spell it) it seems to have helped he is slowly getting back to himself agin we are laughing more and getting along better.
i was so affraid that we were gonna seperate because he was targeting me when he would get upset and in those "kepprage" moods and it was tearing us apart. we now are trying to deal with this but we are so scared we recently met a pharmasist that had a best friend that had epilepsy and died at 36. he had a similar life experiances as shawn (my hubby) and i am so scared that we are not going to spend the rest of our lives togeather and he wont beabel to watch our son grow up. im also scared that i cant deal with all of his upset episodes and how much he has changed i love him more than anything and i just want to help him get through this so he can be shawn again i feel like me talking to him and trying to help him is just making things worse....thnak you for reding if you read it all
