Elaine H
New
- Messages
- 498
- Reaction score
- 0
- Points
- 0
I just wanted to be positive with this subject, and firstly thank you all for your wonderful support and kind words throughout my recent experience, I can't tell you how much it meant to me!
I got home on Monday 30th June, I had the surgery on Thursday 26th June, it seems like a lot longer ago than that, I've just e.mailed my Professor (as you do) to thank him for his wonderful care and support over the last twenty years! He always said he would rid me of my epilepsy if it was the last thing he did!
I just want to say, I had incredible care and support from start to finish, but I have read a lot of negative stuff relating to brain surgery, and it was very off putting just before my surgery, so this is really for anyone who is facing it, or thinking about it.
I can really say that I felt very lucky to have been in a position to have been offered it, I feel sorry for the folks that I was in hospital with initially who were told, sorry, there's nothing we can do about it, and you are stuck with it, so refusing surgery would have been a bit of an insult to them!
I had a lot of bad seizures, mainly Complex Partial and some very intense auras before my operation, I know that was the stress of it all, but I can honestly say that I've had nothing since, not even the hint of an aura.
I spent a lot of my time in hospital writing up my notes for my book "Fit For Life" I took a lot of photos aswell, when I get them downloaded onto this computer, I'll have to show you a couple, the only real downside of brain surgery is the mess it makes of your hair eh girls? I like to try and look my best at all times, and I wouldn't go into town this morning as I do look like I've had a bad fall out with Mike Tyson at the moment, I have managed to get my makeup on but I still look like a punk rocker that time forgot!! and I cannot bear my ears to show, and my left ear is there in all it's glory at the moment!! AAAARRRGGGHHHH!!!!!!!!!!!!!!
If you are reading this and facing surgery, please do what I have done, find out as much as you can about it, ask all the questions you can, don't be afraid, I can't say it doesn't hurt, but what's the famous saying?...."No pain no gain!" How true that is eh? I have stopped my painkillers today, nearly a week after the op, I just felt like I had a really bad hangover, it's not a pain that we can't deal with honestly! I am just so fascinated by how he did it, when I go for my follow up in August, I'm going to ask him to explain how he removed my right Hippocampus? It may sound morbid, but I have always had a genuine fascination for the human brain, I think it's a part of the body that we so have to respect, like the heart!
Anyway, I won't waffle on, but please ask me anything you want if you are facing surgery, mine was a Right Temporal Lobe Resection, and I had a Cavernoma removed form the Right Temporal Lobe in Sept 2000, so ask away, all my experiences cannot have been in vain, and to give something back is of paramount importance to me!
Love to you all, you are an amazing bunch of people!!! Please keep in touch, even if I never had another seizure again, I will never stop my "flagwaving" for the cause!! I think of all the people that are, and will be going through all the s---t that we've been through in the years to come, and I don't want that happening!
Cheers All
Loadsalove
Elaine xx:brain:
I got home on Monday 30th June, I had the surgery on Thursday 26th June, it seems like a lot longer ago than that, I've just e.mailed my Professor (as you do) to thank him for his wonderful care and support over the last twenty years! He always said he would rid me of my epilepsy if it was the last thing he did!
I just want to say, I had incredible care and support from start to finish, but I have read a lot of negative stuff relating to brain surgery, and it was very off putting just before my surgery, so this is really for anyone who is facing it, or thinking about it.
I can really say that I felt very lucky to have been in a position to have been offered it, I feel sorry for the folks that I was in hospital with initially who were told, sorry, there's nothing we can do about it, and you are stuck with it, so refusing surgery would have been a bit of an insult to them!
I had a lot of bad seizures, mainly Complex Partial and some very intense auras before my operation, I know that was the stress of it all, but I can honestly say that I've had nothing since, not even the hint of an aura.
I spent a lot of my time in hospital writing up my notes for my book "Fit For Life" I took a lot of photos aswell, when I get them downloaded onto this computer, I'll have to show you a couple, the only real downside of brain surgery is the mess it makes of your hair eh girls? I like to try and look my best at all times, and I wouldn't go into town this morning as I do look like I've had a bad fall out with Mike Tyson at the moment, I have managed to get my makeup on but I still look like a punk rocker that time forgot!! and I cannot bear my ears to show, and my left ear is there in all it's glory at the moment!! AAAARRRGGGHHHH!!!!!!!!!!!!!!
If you are reading this and facing surgery, please do what I have done, find out as much as you can about it, ask all the questions you can, don't be afraid, I can't say it doesn't hurt, but what's the famous saying?...."No pain no gain!" How true that is eh? I have stopped my painkillers today, nearly a week after the op, I just felt like I had a really bad hangover, it's not a pain that we can't deal with honestly! I am just so fascinated by how he did it, when I go for my follow up in August, I'm going to ask him to explain how he removed my right Hippocampus? It may sound morbid, but I have always had a genuine fascination for the human brain, I think it's a part of the body that we so have to respect, like the heart!
Anyway, I won't waffle on, but please ask me anything you want if you are facing surgery, mine was a Right Temporal Lobe Resection, and I had a Cavernoma removed form the Right Temporal Lobe in Sept 2000, so ask away, all my experiences cannot have been in vain, and to give something back is of paramount importance to me!
Love to you all, you are an amazing bunch of people!!! Please keep in touch, even if I never had another seizure again, I will never stop my "flagwaving" for the cause!! I think of all the people that are, and will be going through all the s---t that we've been through in the years to come, and I don't want that happening!
Cheers All
Loadsalove
Elaine xx:brain:
Last edited: