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  #1  
Old 03-15-2016, 06:53 AM
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Phenobarbital and Bone Density


I've been taking Phenobarbital for the past 10 years. I haven't had any seizure activity at all...."NONE"! The problem is, I had a Bone Density test and my bones are so brittle from it. I actually have 3 micro fractures in my left wrist. I do a lot of hiking, and the strap on my poles go around my wrist. They're not tight, but I think that's what did the damage. It hurts like a #%&%!!!

My question is: does anyone else have this problem if you're taking Pheno? I'm gonna be 60 in a few weeks, so maybe age has something to do with it also.

What a double edge sword that drug is, huh? Helped stop my E, but is messing up my bones.
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Old 03-15-2016, 08:47 AM
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Dilantin is the worst for bone loss, but Pheno's on the list. Check out http://epilepsytalk.com/2010/04/17/a...-osteoporosis/

Your neurologist should have been recommending a calcium supplement all along.
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Old 03-15-2016, 08:58 AM
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. . . and perhaps vitamin D, depending on how much sun you are exposed to and what the Vitamin D levels are in your body (can be measured with a blood test). Vitamin D helps the body absorb the calcium.
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Old 03-15-2016, 10:57 AM
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Do lamotrgine do aswell cos I was called in for 1 then bone scan now mri
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Old 03-15-2016, 12:03 PM
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Lamotrigine isn't known to be associated with bone loss. Doesn't mean it isn't, but all the studies done so far haven't shown a connection.

The anti-epileptic drugs that have shown clear negative effects on bone are phenytoin, phenobarbital, primidone, and carbamazepine.
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Old 03-15-2016, 01:24 PM
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I find mystery how different things work when some people same tho g
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Old 03-15-2016, 04:29 PM
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Thanks for the replies. My Nero told me to take this because it has enough Calcium and vitamin D in it. He told me to take it about a year ago, but I never took it. Now I'm sorry I didn't listen to him.

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Old 03-15-2016, 04:54 PM
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Nice holiday in hawhi mor appealing
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Old 03-15-2016, 05:07 PM
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Originally Posted by seagull View Post:
Nice holiday in hawhi mor appealing
I hear ya on that one Seagull, LOL
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Old 09-01-2016, 10:00 PM
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Did you have a full DEXA scan or just the abbreviated where they image only your wrists and/or ankles. The best DEXA to have would be the scan where your hip and lower lumbar spine are imaged and then you receive a 'score' that would put you in normal, osteopenia, or osteoporosis categories.
I also take phenobarbital and have for 40 years. I also take a small dose of prednisone for RA. So, I have a double risk for osteoporosis. My scores remain in the middle with women my age, although one of the hip measurements has put me in the osteopenia category with a risk of 25% for a hip fracture in the next 10 years. I take 2000 mg of vitamin D a day. I have several microfractures in my spine, which like you said are not unusual considering our age...I am 64. A fracture from full blown osteoporosis is best described as a fall caused because the hip fractured first then you fall, Ask your doctor to order a full DEXA scan. Best to you.
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Old 09-02-2016, 02:01 PM
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Originally Posted by MaryK View Post:
Did you have a full DEXA scan
Yes I did. My Nero Doc said it's all due to the Phenobarbital. The thing is, I haven't had any seizure activity since I've been taking this drug, (10 years). So I'm in a position where do I want to treat low bone density, or my seizures? I'll treat the seizures and take the Caltrate and hope it works. So far so good!
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Old 09-07-2016, 07:40 AM
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My neurologist took me off of Dilantin after 20+ years due to the bone loss issues, and replaced it with Vimpat.
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Old 09-07-2016, 11:02 AM
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As a result of long term use of Dilantin (37 yrs) I have been taking Calcium/Magnesium supplements to overcome the bone density issue b/c Dilantin is known to "such the Calcium out of your bones" and have yearly bone scans and the problem has gone away.

I ALSO Take Phenobarbital but that has not been an issue for me.

I'm also 60 yrs old.

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Old 09-07-2016, 03:34 PM
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I started calcium and magnesium.Not on it long enough to know yet.my bone scans come back normal as from few years ago apart from every joint abnormal I suppose arthritis which seems be rolling very quickly.
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Old 04-02-2017, 05:27 PM
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I have been taking chewable Viactiv calcium, Vitamin D and Vitamin K for over 10 years also due to osteopenia from barbituates. This might not be an option for somebody taking blood thinners since vitamin K does not mix well with them.
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Old 04-10-2017, 03:03 AM
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I just got some patches for vitamin B12 it also contain D3 time will tell but so far it not said anything
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