Heya.
i've been trying to find people who have had a left frontal resection for epilepsy, specifically. i can only find the publications on seizure freedom and stats. what i'm looking for is people, post op. Not temporal, not right...left frontal.
i'm sitting on the fence with moving fwd with the surgery. My language is sitting right on the grey matter heterotopia (middle posterior gyrus) in my left lobe and my abstract problem solving etc is chillin riiiight there as well.
i've had my extended telemetry and all the fun stuff. initially they were keen to go for surgery and map in the or- but the surgeon isn't so keen, given my neuropsych results - my exec functions are within the normal range- but comparatively low, so bonus, i'll still have next to no filter, but no one will notice. the issue is in cognitive function aside from that. i scored above average and would see either a deficit or worst case, lose function.
i'm backed into a corner. i cannot possibly stay on meds. my life has zero quality. since accepting care, everything has ground to a halt. but i'm also dependent on the buggers now and was typical of clusters resulting in status before i got on them (23 yrs worth of seizures, they have defo gotten stronger- but i knew me and i was willing to live like that to have quality of life) no longer. so it's surgery or meds. rock, meet hard place.
i'm just looking for people who've had experience in any way specific to post op left frontal resections and what deficits if any, resulted. opinions- good, bad, fantastic etc. hit me. please. i can't find anyone who can relate without doing an apples to oranges temporal or right etc. any apples to apples out there?
38 female. adult onset (at 15) due to FAS- left frontal lobe middle posterior gyrus grey matter heterotopia- generalized structural abnormalities left cortical. left dominant. briviact 250mgs/clobazam 10mgs ativan sublingual as needed. auras, focals, tc's and status resulting in tc clusters- seizure free with meds bar auras and focals - co-morbid diagnosis, med resistant.
i've been trying to find people who have had a left frontal resection for epilepsy, specifically. i can only find the publications on seizure freedom and stats. what i'm looking for is people, post op. Not temporal, not right...left frontal.
i'm sitting on the fence with moving fwd with the surgery. My language is sitting right on the grey matter heterotopia (middle posterior gyrus) in my left lobe and my abstract problem solving etc is chillin riiiight there as well.
i've had my extended telemetry and all the fun stuff. initially they were keen to go for surgery and map in the or- but the surgeon isn't so keen, given my neuropsych results - my exec functions are within the normal range- but comparatively low, so bonus, i'll still have next to no filter, but no one will notice. the issue is in cognitive function aside from that. i scored above average and would see either a deficit or worst case, lose function.
i'm backed into a corner. i cannot possibly stay on meds. my life has zero quality. since accepting care, everything has ground to a halt. but i'm also dependent on the buggers now and was typical of clusters resulting in status before i got on them (23 yrs worth of seizures, they have defo gotten stronger- but i knew me and i was willing to live like that to have quality of life) no longer. so it's surgery or meds. rock, meet hard place.
i'm just looking for people who've had experience in any way specific to post op left frontal resections and what deficits if any, resulted. opinions- good, bad, fantastic etc. hit me. please. i can't find anyone who can relate without doing an apples to oranges temporal or right etc. any apples to apples out there?
38 female. adult onset (at 15) due to FAS- left frontal lobe middle posterior gyrus grey matter heterotopia- generalized structural abnormalities left cortical. left dominant. briviact 250mgs/clobazam 10mgs ativan sublingual as needed. auras, focals, tc's and status resulting in tc clusters- seizure free with meds bar auras and focals - co-morbid diagnosis, med resistant.