Another Newbie

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

O

orchids0725

New
Messages
11
Reaction score
0
Points
0
Hi everyone! I'm a mom of a beautiful baby boy, almost 1yr old! I was seizure free for fifteen yrs. When I was about 6 mo's. pregnant, I experienced an aura. I panicked and was afraid my baby would have seizures. Fortunately, that has not been the case. However, my seizures are back :cry: Mine are described as tonic-clonic seizures.
 
First of all welcome to the site,im sure you will enjoy yourself here.It must be terrible for you with your seizures returning after so long.
I also suffer from tonic clonic,im sure you will find a lot of the answers you seek on this forum,welcome again and take care!!!!
 
Hi orchids0725, welcome to CWE!

Your breakthrough seizures might have been triggered by the higher estrogen levels that occur during pregnancy. Were you on meds at the time? Are you still on them now?

Best,
Nakamova
 
Hello Nakamova,

I had a healthy pregnancy. No meds other than the prenatal vitamins. After I had the tonic clonic seizure four months after giving birth, I started taking Keppra. Now I'm on Vimpat weaning to Lamictal. My doctor ruled out any hormonal changes that occur during pregnancy. Now I'm scheduled for a VEEG in April. Hopefully I will get a better idea of what's causing them.

Regards,
Diana
 
Hi, Orchids,

Welcome to the forum!

I'm so sorry your seizures are back. I'm curious - how did your doc rule out hormones?

Your baby will be fine. Genetic (inherited) epilepsy is pretty rare. :)

The CWE forum is a great place - people with lots of information, and support!
 
With me stress is a real seizure trigger, I don't know if that's the same for you too.

I'm sure going through pregnancy and having a little baby in the house could be a stressful thing. I know it would be for me at least.
 
Welcome to the site! First, congratulations on your new son! When you get a chance you will have to post a picture of him so we can see how adorable he is :) Try to relax if you can. Do what you have been doing, and let us know how your video eeg goes. All the best :hello:
 
You must log in or register to reply here.
Back
Top Bottom