HopeisAlive
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My five year old son has just been diagnosed with complex partial epilepsy. He's having several seizures a day, including at night. He's had a lot of behavioral changes; more negativity, aggressiveness (mainly between seizures), impulsiveness, and even just flat our bizaar behavior. Of course I don't just excuse all of his behavior because he is having seizures, but I also realize that his brain is under going a lot of trauma right now. We learned a lot from the EEG and what parts of his brain are being affected (which is a lot). Then, not to mention he's hardly getting any sleep from the seizures, restlessness, nausea, and limb pain he is having. My heart breaks for him.
Now, we are trying to forge on, on this journey as best we can. We have to still "parent", raise, and lead our son as best we can... it would be an injustice, to him, if we didn't re-direct his behavior; regardless of what's causing it. So... we are learning. We are trying so hard to be patient, while consistent with re-directing his behavior - especially since he has two younger siblings who are also watching all of this and are just as perplexed.
We are trying to find the balance in raising a child who has epilepsy. We, more than anything, affirm our love for him; our son feeling connecting with us, through this, is so important to us. We are trying. This is all so new to us and our lives have changed so much already. The first week, he was having so many seizures he walked around looking intoxicated, drained, irritated and confused - we felt like we hardly saw our son. We know that no matter what OUR SON is in there and our goal is to love him through this as we face this journey together. We are thankful for the hope, comfort and strength that God offers us... in all seasons.
I am thankful for this community and I have been encouraged by the various things I have read -- thank you. I look forward to getting to know some of you.
Jasmine
Now, we are trying to forge on, on this journey as best we can. We have to still "parent", raise, and lead our son as best we can... it would be an injustice, to him, if we didn't re-direct his behavior; regardless of what's causing it. So... we are learning. We are trying so hard to be patient, while consistent with re-directing his behavior - especially since he has two younger siblings who are also watching all of this and are just as perplexed.
We are trying to find the balance in raising a child who has epilepsy. We, more than anything, affirm our love for him; our son feeling connecting with us, through this, is so important to us. We are trying. This is all so new to us and our lives have changed so much already. The first week, he was having so many seizures he walked around looking intoxicated, drained, irritated and confused - we felt like we hardly saw our son. We know that no matter what OUR SON is in there and our goal is to love him through this as we face this journey together. We are thankful for the hope, comfort and strength that God offers us... in all seasons.
I am thankful for this community and I have been encouraged by the various things I have read -- thank you. I look forward to getting to know some of you.
Jasmine
