Dolores, thanks for the info.... I'm new to this form thing, not even sure if I am doing this right, but I must say it is so good to finally be able to communicate with someone that has somewhat the same issues. Also you information has been really helpful. I started my journey with these issues when I was around 19. At first I was a newly married and stayed at home while my husband, whom is now my ex. was working. I would do usual house work and such what some soaps and then take a shower get ready to cook dinner and get ready for him to come home. I had moved miles away from any family and in a new place did not really know anyone. One of my biggest issues is I find it uncomfortable to talk about to other people. I feel like they just think you are weird and have mental issues.... Could be one of the reasons for the depression along with meds. Anyway, it has been good to talk to someone with same issues. After reading some of peoples stories on here it also helps me to realize that my problems with seizures are not really as bad as others. I am not good at talking to Dr.'s I have gone back to a neruo that I saw years ago that I do like and maybe she can help with the issues I have had over the last 6 months. One of the scariest things is that I felt I had it all under control and was accustomed to taking the 300/day. Now I feel like I'm going back to some of the problems I had when this all first started. It was a very scary and depressing issue to go thru. I at that time (19 years old) thought I was so grown up but there was so much I didn't know. Since I do not like to talk about the issue when Dr.'s or other people ask me about it I had decided to write it down so they can read it and this tells how it started I have more on the paper. You may want to read it but then again you can just ignore it... Which ever you chose I want to say thanks for the support and info you have shared with me. I have appointment with neruo Monday for another EEG and I guess to talk to Dr. about where we go from here. All I think is if I can just get Monday behind me then maybe I can go back to living the way I was and try to forget it.
Beginning of my story:
Married in February 1979 and moved to New Orleans or rather to a small community outside Picayune Mississippi not far from New Orleans. My husband worked in New Orleans and I was staying at home, planning on going back to school in the fall. I would spend my day not doing much… maybe go to the grocery store to get items needed for dinner that evening, had 3 soap opera shows I was into watching. After they were over I would go take a shower or rather would have to take a bath and stick my head under the facet. The place we lived I could not get the shower to work so this was the alternative. One day after having my shower/bath, I had got out. Started having this weird feeling that the best way I can describe it was a déjà vu experience. It was like a dream or something you could see but could not make out. I sat down on the toilet. The next thing I know I was picking myself up off the floor. After I did this the feeling of picking myself up off the floor was like did I really do this or am I just imagining that I did this. Felt so strange and so odd. I did not bite my tongue nor did I have any bruises or such. I felt that it was so odd and strange that I did not mention this to anyone. About a month or so later it happened again and also just as I had finish with my bath/shower. Not sure exactly how many times this happened, but again because it was so strange and I did not know how to explain it to anyone I did not mention it to anyone. I was always alone too therefore no one else saw what was happening. Not sure how much time had passed since the first episode but I do know that the next instance was in the fall. It was on a Sunday and my husband (now my ex), where at home watching the Dallas Cowboys and other games I guess as well. I remember lying on the couch, and I kept getting the déjà vu feelings…. I would get this and then I would just go off to a deep sleep. I spent most of the day it seems like sleeping. I guess there were no physical signs of it so my husband probably thought that I was just tired and sleeping. We went to bed that night, I don’t even know if I remember going to bed. I do remember coming to and my father-in-law was standing in the bed room door with his wife there behind him. My husband standing next to the bed and said, “come on we are taking you to the ER, you just had a seizure”. I had a grand mal seizure after going to bed in my sleep. We went to the ER in Slidell, LA. They did not really do anything but told him that I needed to go see a neurologist. We made an appointment with a Dr. Patricia Cook in New Orleans, LA. She sent me to have a CT scan of which she later informed us that it did not show any brain tumor, so wanted me to have an EEG. After the EEG all she informed me of was that the EEG did show some irregular brain activity, gave me a prescription for Dilantin and told me to take 100/mg 3 times a day. I had never known anyone with an issue like this and she did not really explain a whole lot. Computer as we have them today were not as advanced. If you wanted to find out anything you either went to a book store or a library. I went to a book store and read in a book where Dilantin could affect your liver. This of course at my age was horrifying.
