Cluster seizures... exactly every 3 weeks
- Thread starter Anela
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
Frink
New
- Messages
- 1,012
- Reaction score
- 1
- Points
- 0
Hi Anela,
If you have a 28 day menstrual cycle it could be catemenial epilepsy.
http://www.epilepsy.com/learn/triggers-seizures/menstruation
If you have a 28 day menstrual cycle it could be catemenial epilepsy.
http://www.epilepsy.com/learn/triggers-seizures/menstruation
Hi Anela,
The same thing happens to me every month even after I have had brain surgery. My Dr. told me it's all do to hormones changing each month like Frink mentioned catemenial epilepsy or seizures. What's going on is the estrogen level goes up and that causes more excitement in the brain while at the same time the progesterone level goes down and progesterone helps calm the nerves. This is what my Epileptologist told me. I then started eating more nuts or almonds and as crazy as it sounds it helped reduce the seizures. Also you may want to try taking the drug Diamox Sequel which I started taking 5 days before my period and that got rid of the extra fluids in my body and reduced my seizures a lot. I now take the drug everyday. Another thing you can do is go to a natural food store and buy some natural progesterone cream it's made of nuts and wild yams you put it on your skin and it increases the progesterone level. I wish you the best of luck and May God Bless You!
Sue
The same thing happens to me every month even after I have had brain surgery. My Dr. told me it's all do to hormones changing each month like Frink mentioned catemenial epilepsy or seizures. What's going on is the estrogen level goes up and that causes more excitement in the brain while at the same time the progesterone level goes down and progesterone helps calm the nerves. This is what my Epileptologist told me. I then started eating more nuts or almonds and as crazy as it sounds it helped reduce the seizures. Also you may want to try taking the drug Diamox Sequel which I started taking 5 days before my period and that got rid of the extra fluids in my body and reduced my seizures a lot. I now take the drug everyday. Another thing you can do is go to a natural food store and buy some natural progesterone cream it's made of nuts and wild yams you put it on your skin and it increases the progesterone level. I wish you the best of luck and May God Bless You!
Sue
Hi Frink and Porkette
Thank you both for your reply and suggestions. My neurologist thought that it is catemenial epilepsy so we tried Depo-Provera injection which did nothing at all. I also tried Clobazam I believe it was if I remember correctly 3 days before my period and during my period, didn't change anything so we stopped that. I take Lorazepam when I have 3+ seizures. Since I came off Depo-Provera my menstrual cycle is not 28 days for now but I still have seizures every 21 days.
I will try eating almond there's no harm
I will mention Diamox to my neurologist.
Thank you again.
Thank you both for your reply and suggestions. My neurologist thought that it is catemenial epilepsy so we tried Depo-Provera injection which did nothing at all. I also tried Clobazam I believe it was if I remember correctly 3 days before my period and during my period, didn't change anything so we stopped that. I take Lorazepam when I have 3+ seizures. Since I came off Depo-Provera my menstrual cycle is not 28 days for now but I still have seizures every 21 days.
I will try eating almond there's no harm
I will mention Diamox to my neurologist. Thank you again.
Frink
New
- Messages
- 1,012
- Reaction score
- 1
- Points
- 0
Just as an update, Sweet potatoes/yams do not contain progesterone.
Wild yams, which are a different plant than sweet potato/yam, contain a phytoestrogen called diosgenin which through a chemical process can be converted to progesterone, but only in a lab, not in the human body.
http://umm.edu/health/medical/altmed/herb/wild-yam
Wild yams, which are a different plant than sweet potato/yam, contain a phytoestrogen called diosgenin which through a chemical process can be converted to progesterone, but only in a lab, not in the human body.
http://umm.edu/health/medical/altmed/herb/wild-yam
I don't know anything about yams lol. I had 2 seizures last night and one or two today not too sure. I feel AWFUL. I haven't eaten anything all day. I feel so depressed and emotionally drained. I find aftereffects harder than seizures themselves. I don't know what to do :'(
Thank you Porkette. Will that speed up the moodiness and depression. I feel so depressed at the moment
CBD Oil Helps Calm Most People Down!
Anela,
WELCOME TO CWE!!!!!!
CBD oil has worked wonders for many people who have had E that seemed to be resistant to all of the medications. It ia thought that this is done because the calms down activity in the brain if the level of activity seems too high. The good part is that CBD oil doesn't make a person high like regular marijuana does. :clap:
ACsHuman
Anela,
WELCOME TO CWE!!!!!!
CBD oil has worked wonders for many people who have had E that seemed to be resistant to all of the medications. It ia thought that this is done because the calms down activity in the brain if the level of activity seems too high. The good part is that CBD oil doesn't make a person high like regular marijuana does. :clap:
ACsHuman
Thank you :hugs:
Which one would you suggest? I looked online there are loads of different ones.
Hi Anela,
Acshuman gave you the correct info. regarding the CBD oil. It calms you down but it doesn't make me feel the least bit depressed. A lot of depression is all part of the epilepsy or it can be the seizure med a person is taking. If you are interested check out healthyhempoil.com I buy the mouth spray and get it in peppermint flavor and just squirt it once in my mouth and I am amazed on how much my seizures have been reduced. I wish you the best of luck and May God Bless You!
Sue
Acshuman gave you the correct info. regarding the CBD oil. It calms you down but it doesn't make me feel the least bit depressed. A lot of depression is all part of the epilepsy or it can be the seizure med a person is taking. If you are interested check out healthyhempoil.com I buy the mouth spray and get it in peppermint flavor and just squirt it once in my mouth and I am amazed on how much my seizures have been reduced. I wish you the best of luck and May God Bless You!
Sue
Yes my depression is like a 100 times worse after I've had seizures and then it sort of goes down a little. Then we are back to same evil routine in 3 weeks or so lol. Never ending vicious circle. Thank you for suggestions I will look into that
