Confused

[USMC Veteran]

Hey all, it's been awhile since I posted and wanted to update and question. My VA neurologist has me on 150mg 2x day of Lamictal and has said I have Tonic Colonic? I figured with my loss of time and the after effects I was more likely complex partial! Does this sound like he is fishing since all my tests come back "normal"? Does this happen often? He has also decided since I bite my tongue in my sleep all the time that I am having nocturnal seizures too but living alone, there is no one here to verify. I am also going insane on disability while they figure this out and feel they are no closer now than last August. Any insight would be helpful guys.
Michael

 

[Fedup]

Have you tried setting up a camera in the room to capture any seizures you might have. To be honest with you, show me a doctor who is not fishing for something and I am not being smart either.

 

[Nakamova]

The tongue-biting can be one symptom of a tonic-clonic, so it's possible your doc isn't off-base with that diagnosis. If you can, keep a diary tracking what happens. When you wake up with a bitten tongue, do you also have muscle soreness and backaches? Do you feel unusually dazed or exhausted? Any unexplained injuries, bruises, etc.?

It's a bonus if you can record one happening. Often there's a kind of a "scream" right before a tonic-clonic seizure occurs, so even a sounds recording might provide a clue. And maybe they could schedule an overnight sleep test/EEG/ that would be the most helpful...

 

[marty]

Gday

The camera sounds like a great idea , how about a dash cam thing that people put in their cars ? my eeg ( i may have mispronounced that , wires stuck to my head for 5 days ) came back nearly normal with a just little spike , i used to have siezures while asleep and i used to tear sheets also fall out of bed ( may be differant for you though ) i have always had a very busy lifestyle ( own business , long distance trucking ) and it was bloody hard to go from that to nothing , for me i found bugger watching tv all day all it does is depress me wasting my real life watching people living make believe lives on tv , i used to volunteer with a few community things , garden , and walk my dog for ages , have you possibly got a mate or family that would be able to keep a eye on you while you sleep for a while ?

all the best

 

[MuayThaiFighter]

Yeah, I agree with everyone else. Having a camera to see what is happening at night really might be a huge help for your Dr.

Best of luck to you with disability, it can be so frustrating. I remember getting so angry having to fill out so much paperwork while being in such a fog. It took me a long time but I was able to win my court hearing. So if you have any questions feel free to PM me about that or whatever. Best wishes to you.