Correct diagnosis only w/ EEG??

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AnneM

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1) how many of ya'll see a PA in the Dr's office instead of the Dr.? Is this typical or is this office trying to see too many patients?

2) Original reason for appt w/ Dr. for migraines. Requested an appt and was scheduled to see her 2 months later on June 24. I begged for earlier because of migraines and was told no & no cancellation list.

3)prior to appt I suffered a TIA on june 8th, and went to an ER w/ a bunch of clowns. Called Neuro's office and they insisted I could not be seen prior to my appt, which was 17 days after the TIA. (should I have seen the red flag then?)

4) FYI, I have a cartoid stenosis (partial blockage) that is now @ 70-75% and will have an endartectomy surgery and a nite in the ICU on 8/25.

5) HAD EEG ON 8/12. Reason: I had told PA that over the years, infrequently, would smell bad things I knew weren't there, and recently had a metallic taste in my mouth. Mentioned in childhood I heard music & recently my cell ringing and garbled conversations that I knew weren't there.

EEG tech said @ end of test, 'if I'd seen anything abnormal I would tell you, and I don't. So, I'll turn the EEG info over to the Dr. for her to look at.

6) 8/19 saw PA, thought I would have been spoken to by the Dr. w/ the results I was surprisingly given. PA told me there was (1) one spike in the EEG. I asked time of the spike within the duration of the EEG. She could not tell me. Also I had a slow wave in my anterior temporal lobe which suggested seizures. She also said that she DID NOT think auditory hallucinations were part of seizure. I've read differently. Then she went on to start suggesting meds for me to take. Depakote or trileptal. I knew they were strong w/ lots of side effects and told her I wanted to wait until after my surgery to discuss additional meds. I suffer from major depressive disorder & anxiety. Taking new meds & changing up current depression meds.could send me into a deeper depression, which is VERY BAD at this time.

7)Called Neuro office today & left msg that I want to speak to Dr. about this seizure diagnosis. Office called back and offered me an appt on 8/28.

8)@ 6pm today, I received a call from the Dr. She asked me to write down all my questions for the appt. I told her the appt would be a few days after my endartectomy...no reply.

Then she said "I would appreciate it if you do not call the office again before your appointment". I have never had a Dr. say any thing like this to me. I was so taken back I couldn't answer. I think after a long pause I said that I would see her on 8/28.

Should I trust the instincts I felt then, to run in the opposite direction, to look for a new neurologist? I actually felt a bit queasy with her comment and my concern if she was a good Dr. I cried a lot after I hung up.

I haven't told anyone about any of this. Other family members are having their own problems and I don't want to add to them. I am all alone except for this forum. I'm so scared I have a Neuro that will not do a good job. I am not one to blindly follow what a Dr. says until I clearly understand.

I always doubt myself and wonder if I am being too reactive. Though she said all these things in a normal tone of voice, I felt she was harsh. With my MDD disability, upcoming surgery and 4-5 migraines a week I'm overwhelmed and don't want to make a rash decision. But, still, after typing all of this I don't want her as my Dr.. I have lost my faith in her caring about my health.
I hope someone takes the time to read this. Thank you for listening to my rantings. Anne:crying:
 
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