wendyleigh25
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Hello everyone! I have been involved in a forum group before and found it very helpful as I am sure this one will be too. My last one was because we (my husband and I) were trying to conceive and we were infertile so fertile thoughts was the last one and only one I have belonged to.
Any who...this is my story...sorry if it bores you. It has been quite tramatic for my whole family especially my husband and I and I am sure my little boy too he just cannot vocalize it yet to me being he is only ten months now. This all started on August 8 of this year. It was my typical day. My husband and I own a fruit retail stand but we were off that day so we asked his mom and neices and nephews to go eat with us at my fav restaurant. We are truly their best customers. 2 out of 4 of my seizures have been there and no its not the food or air there we just go ALOT!
Well we were about to get our food when I fell over onto my husband. He looked at me and said what are you doing. I did not respond of course and then I fell to the ground and started convulsing. He called 911 immediately. The next thing I know there are paramedics over my head and asking me all kinds of questions. Lots I did not know! Who's the president? Come on guy I just had my first seizure! Ask me an easy one. Well thats easy in the right state of mind. Anyhow long story short I go to ER they released me hours later since it was my first one and I had another in the parking lot! They wheeled me back in on a stretcher...next thing I know I am griping and saying I thought yall said I could go home. The dr said you could have but you had another one. I was now really freaking out in my head. I had no warning of either of these two seizures. None whatsoever. Well they put me ICU for the night then released me the next day.
I was put on lamictal,dilantin,depakote,keppra,topamax. I had allergic or just bad side effects to them all. Two months later I had another seizure. Oh during all this I had EEG's done and they came up with juvenile myoclonic epilepsy (a genetic form of epilepsy). They said its very rare to get it in your 20's but it can happen. Nothings impossible I guess. Then after that seizure I had another one six weeks from the last one. They keep getting shorter and shorter between periods when I have one.
Well each time I would have an allergic reaction to a medication I would fight that much harder to get this vagus nerve stimulater put in. I want many more children. I am only 25. I had a b-day recently. SO I want more kids and with this VNS the hope is that I can be on zero medication or very little. It was one heck of an ordeal to get this put in. I have seen so many dr's: neurologists, neuro surgeons, pain management, primary care, epileptologists, ear nose and throat dr. He was the one who finally agreed to put it in but said I had to consult with a neurologist that he worked closely with. The neurologist agreed to let me get it done. I love him for this and so far so good.
It has kinda made my asthma come back but its well worth it. I am on a very low dose of klonopin mainly for anxiety but it also helps with my seizures cause one time I stopped it and had a seizure. Well thats my story. Hope it was not too boring. I am just having a very hard time coping. We now have to have a nanny. I cant drive and I have debilitating anxiety thinking I will have a seizure. My last one hurt I was in wal mart and fell straight back and hit my head. I hurt for a full ten days and got a concussion. I just need comfort and support and an ear cause my hubbie I think cant take too much more!
Any who...this is my story...sorry if it bores you. It has been quite tramatic for my whole family especially my husband and I and I am sure my little boy too he just cannot vocalize it yet to me being he is only ten months now. This all started on August 8 of this year. It was my typical day. My husband and I own a fruit retail stand but we were off that day so we asked his mom and neices and nephews to go eat with us at my fav restaurant. We are truly their best customers. 2 out of 4 of my seizures have been there and no its not the food or air there we just go ALOT!
Well we were about to get our food when I fell over onto my husband. He looked at me and said what are you doing. I did not respond of course and then I fell to the ground and started convulsing. He called 911 immediately. The next thing I know there are paramedics over my head and asking me all kinds of questions. Lots I did not know! Who's the president? Come on guy I just had my first seizure! Ask me an easy one. Well thats easy in the right state of mind. Anyhow long story short I go to ER they released me hours later since it was my first one and I had another in the parking lot! They wheeled me back in on a stretcher...next thing I know I am griping and saying I thought yall said I could go home. The dr said you could have but you had another one. I was now really freaking out in my head. I had no warning of either of these two seizures. None whatsoever. Well they put me ICU for the night then released me the next day.
I was put on lamictal,dilantin,depakote,keppra,topamax. I had allergic or just bad side effects to them all. Two months later I had another seizure. Oh during all this I had EEG's done and they came up with juvenile myoclonic epilepsy (a genetic form of epilepsy). They said its very rare to get it in your 20's but it can happen. Nothings impossible I guess. Then after that seizure I had another one six weeks from the last one. They keep getting shorter and shorter between periods when I have one.
Well each time I would have an allergic reaction to a medication I would fight that much harder to get this vagus nerve stimulater put in. I want many more children. I am only 25. I had a b-day recently. SO I want more kids and with this VNS the hope is that I can be on zero medication or very little. It was one heck of an ordeal to get this put in. I have seen so many dr's: neurologists, neuro surgeons, pain management, primary care, epileptologists, ear nose and throat dr. He was the one who finally agreed to put it in but said I had to consult with a neurologist that he worked closely with. The neurologist agreed to let me get it done. I love him for this and so far so good.
It has kinda made my asthma come back but its well worth it. I am on a very low dose of klonopin mainly for anxiety but it also helps with my seizures cause one time I stopped it and had a seizure. Well thats my story. Hope it was not too boring. I am just having a very hard time coping. We now have to have a nanny. I cant drive and I have debilitating anxiety thinking I will have a seizure. My last one hurt I was in wal mart and fell straight back and hit my head. I hurt for a full ten days and got a concussion. I just need comfort and support and an ear cause my hubbie I think cant take too much more!
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