Epilepsy is taking over my life!!!! HELP PLZ!!!

[epilepsygirl]

Okay heres the deal, I have no more medication and cant afford mine but apparently i cant get health coverage until august! I hate having seizures. I have a boyfriend who is "uncomfortable" with my seizures, but he doesnt ask how i feel about them. I told him now that i dont have meds i'm gonna need his help at some point. What does he say "I'm uncomfortable with the situation" well so am i! i hate them! i cant do really anything now. I have to stop watching the lighting outside cuz it flashes too much and being on the computer is just risking having one. Plus lets not even start with the tv. I just wish there was a way to be back on my meds. I just cant afford it. thats the worse part. HELP!!! i need help with having my bf understand and try to understand my feelings better and helping him be more comfortable and with a way i can get my meds so i can do the things i love again without worry!!! HELP ME PLZ!!! I want MY life back. Its not my epilepsy's life to take its mine and i want control again!!!

 

[Sourgrape]

Get on the websites of the drug manufacters. Find their drug assistance page and follow their instructions on requesting either free meds or greatly reduced meds. Yes it works, I've done it for a few of the medications I have had to take.

 

[sandi]

meds

Can you call your old doc and see i they can get some samples ?

 

[PhylisFeinerJohnson]

RxSavingsPlus is a free drug/prescription discount card, to help lower the price for medication. It can be used at CVS Pharmacy, Target, Rite Aid and 60,000 participating pharmacies nationwide. And offers an average of 20% off the retail price of drugs. (Kind of skimpy, but one-stop shopping.) http://www.rxsavingsplus.com/

The CVS/pharmacy Health Savings Pass allows you to pay only $9.99 for a 90 day supply of your generic prescription. http://www.cvs.com/CVSApp/promoContent/promoLandingTemplate.jsp?promoLandingId=1046

Target’s FREE Prescription Discount Card saves you up to 80% on Target’s generic medications and up to 15% on Target’s name brand prescriptions. http://www.rxfreecard.com/target-prescription-savings.html

Walgreens Prescription Savings Club has over 400 generics priced at $12 for a 90-day supply. https://webapp.walgreens.com/MYWCARDWeb/servlet/walgreens.wcard.proxy.WCardInternetProxy/RxSavingsRH

Walmart and Sam’s Club offer you ”special negotiated pricing on prescription drugs” with their PatientAssistance.com Prescription Drug Program. (Sounds kind of fishy to me.) http://www.patientassistance.com/wmt.html

Hope this helps. And tell your boyfriend that if he can't stand the heat in the kitchen to get out.

 

[Meetz1064]

You know

Phylis just gave you some really great links to check out. DO check them out.

And, I LOVE her suggestion about the boyfriend. Seriously. He needs to have his head checked, and think about someone else for a change.

 

[stilldancing_98]

Look if that does not work pm me Teresa

 

[Endless]

This thread has some great information:

http://www.coping-with-epilepsy.com/forums/f23/when-you-cant-afford-medication-1452/


bf: you deserve better. but if you decide to keep him try taking him with you to your doctor's appointments. And maybe get him to start hanging out in this forum. Lots of family members and friends do.

 

[drarvindr]

Re: the meds ,
i would suggest asking your doctor for free samples. we tend to stock up on them ( the scrupulous docs) or free stuff ( idiot docs). It's one of the reasons we tolerate the ramblings of med reps.

If your doc doesn't have samples , try google-ing to find the latest brand in the market in your region. The pharma reps tend to give you good deals ( buy ten strips and we'll throw in the next ten for free) because they have to cultivate customers and wedge their way into a highly competitive market. the newer the brand the better the deals. it might save you some substantial $$$ while you wait for the insurance to kick in

I'm not the guy to ask about insurance because here its every man woman and child for themselves. if you're poor you dont get treatment unless it's at a government facility where the conditions are so squalid you're likely to come out worse than you went in.

As re: your bf , he's an idiot at the moment but he must be kind hearted inside if you saw fit to date him. Give him some time and explain the harsh realities of epilepsy. There must be no sugar coating.Tell him what you feel during a seizure .Send him a few links or make him join CWE. Understanding leads to empathy and compassion ( which you need more than sympathy and fear) and is the bedrock of a healthy relationship . If he sticks by you you will have more support and will be better off as a couple for it . If not you can ditch him ASAP and move on with the rest of your life. Either way it's win-win.

 

[stormydys]

after years of having a bf that doesn't seem to grasp the concept of my own problems with epilepsy, I would suggest leaving now rather than wait and hope and pray that someday he just might , its been ten years for me now and nothing has changed , I hope you figure a way to get the meds.

 

[jyearta]

I hope you go through with the suggestion you have gotten on the prev. post concerning your medic.

As for that BF, this pass summer & fall, it was really bad for me, it wasn't the seizures, my dilantin levels were high and my B-12 was high. I didn't understand what was happening to me.
When I needed to go to the Dr. my husband would tell me I could find a way there. I told him I NEEDED him, to help me tell the dr. what was happening. but he wouldn't listen to me.
So I called a restate company, checkied into putting our house up for sale, (with the bad ecom.) he couldn't believe I would do something like this. I told him we had to move closer to him work, so that he could take me to my dr. appt.
I was tired of everyone telling me it wasn't their place to take to dr. appt. that it was my husband who should be taking me. And they were right.
WELLL he listen to me then, but for some reason I had to take a drastic step for him to HEAR me.

I didn't like having to do this. I feel so bad for him I know that my epilepsy affects him also.

I told him to get on this forum and see what it is like. To hear/read for himself, be he would not do it.

 

[stormydys]

I hope you go through with the suggestion you have gotten on the prev. post concerning your medic.

As for that BF, this pass summer & fall, it was really bad for me, it wasn't the seizures, my dilantin levels were high and my B-12 was high. I didn't understand what was happening to me.
When I needed to go to the Dr. my husband would tell me I could find a way there. I told him I NEEDED him, to help me tell the dr. what was happening. but he wouldn't listen to me.
So I called a restate company, checkied into putting our house up for sale, (with the bad ecom.) he couldn't believe I would do something like this. I told him we had to move closer to him work, so that he could take me to my dr. appt.
I was tired of everyone telling me it wasn't their place to take to dr. appt. that it was my husband who should be taking me. And they were right.
WELLL he listen to me then, but for some reason I had to take a drastic step for him to HEAR me.

I didn't like having to do this. I feel so bad for him I know that my epilepsy affects him also.

I told him to get on this forum and see what it is like. To hear/read for himself, be he would not do it.

Glad he finally listened, its nice to hear that some people do actually start to understand a little more about it

 

[CrunchyFrog]

bf: you deserve better. but if you decide to keep him try taking him with you to your doctor's appointments. And maybe get him to start hanging out in this forum. Lots of family members and friends do.

I agree 100% with this, if he's not supportive he's not worth the effort. You have no control over what is going on with your Epilepsy and you're obviously stressed enough.
I've been blessed with my partner who has always been supportive since I first started having seizures and he's been incredibly tolerant since after my seizures I go through a period where I'm aggressive and become verbally abusive and he's the one that cops all of it because I only have seizures in my sleep. Having Epilepsy is difficult to deal with at any time, it's harder when you're surrounded by people who are ignorant. As Endless said if you decide he's worth it, try educating him by taking him to your appointments or checking out the forum.

Definitely check out all of those links provided I hope you find something helpful.

 

[nflynn1228]

Okay heres the deal, I have no more medication and cant afford mine but apparently i cant get health coverage until august! I hate having seizures. I have a boyfriend who is "uncomfortable" with my seizures, but he doesnt ask how i feel about them. I told him now that i dont have meds i'm gonna need his help at some point. What does he say "I'm uncomfortable with the situation" well so am i! i hate them! i cant do really anything now. I have to stop watching the lighting outside cuz it flashes too much and being on the computer is just risking having one. Plus lets not even start with the tv. I just wish there was a way to be back on my meds. I just cant afford it. thats the worse part. HELP!!! i need help with having my bf understand and try to understand my feelings better and helping him be more comfortable and with a way i can get my meds so i can do the things i love again without worry!!! HELP ME PLZ!!! I want MY life back. Its not my epilepsy's life to take its mine and i want control again!!!

Hey I am really sorry for what you are going through. I dont have epilepsy myself but my boyfriend does. When he wasnt able to afford his Tegretol XR any more I did some research. He had his dr write a letter and send a form to the manufactuer who sent him 3 month supplies of tegretol for free until he got a job and was able to afford the rx with his insurance. Talk to you dr about this. The manufacturers are always willing to help!