I have been having seizures lately , my fiance of ten years is tired of seeing them, says its beccause he can't do anything about them. Its to the point where I must find a medicine that works besides the one I am on ,dilantin. Too many years on it has me at toxic levels whenever they check my labs, the concern is my liver will not hold out . Well dear fiance has informed me he just cant deal with another change in med's but he loves me.? Aren't we talking about death staring me in the face if my liver goes and I am not a candidate for a liver transplant? confused, hurt, you name it.....
fiance of 10 years just tired of my epilepsy
- Thread starter stormydys
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nicholas:)
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Stormydys
all relationships have their testing moments of difficult patches. However, this is a relatively long relationship and I should have imagined that he had got use to supporting you and understanding your condition.
He should continue to support you, after all if he loves you he will stand by you.
Working with the Neurologist you may indeed have a medication change. I'm sure, in light of the toxins in your body something will be changed for the better. Talk with your GP or Neurologist about this.
I truly hope things improve re your relationships.
Nick
all relationships have their testing moments of difficult patches. However, this is a relatively long relationship and I should have imagined that he had got use to supporting you and understanding your condition.
He should continue to support you, after all if he loves you he will stand by you.
Working with the Neurologist you may indeed have a medication change. I'm sure, in light of the toxins in your body something will be changed for the better. Talk with your GP or Neurologist about this.
I truly hope things improve re your relationships.
Nick
how long have you been on dilantin, at what dosage? I ask because I have been on it for 30 years at 400 + mg a day and liver is good. My level stays on high end 17-18 has been higher. have you tried add ons instead of switching meds completely?
as to your fiance; i question his "love" for you. after ten years a friend, even a very good friend could grow tired of the drama that comes with seizures. true love endures all.
as to your fiance; i question his "love" for you. after ten years a friend, even a very good friend could grow tired of the drama that comes with seizures. true love endures all.
huskymom
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I am not sure that you want to keep this fiance. That is a long time to be engaged..maybe you were very young. I sure don't think that anyone that holds an illness that you have no control over your head, is one that you need in your life. You need unconditional love and support. We will be here for you. If you need to add a med, or change one, you can count on us to be here for you. I hope things start to look up soon
Belinda1961
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Stormydys
I hope this is just a rough patch with your fiancee. I can understand him saying he can't handle med change but he still loves you. I've gone through similar with my husband who has epilepsy and is controlled has seen me on more med and through 3 VNS surgeries and more.
Have you really sat down and talked with him and explained things.
Belinda
I hope this is just a rough patch with your fiancee. I can understand him saying he can't handle med change but he still loves you. I've gone through similar with my husband who has epilepsy and is controlled has seen me on more med and through 3 VNS surgeries and more.
Have you really sat down and talked with him and explained things.
Belinda
MaeDae
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I have no advice for you Stormy, I just wanted to let you know, I am praying for you. I hope things get better real soon, I pray the seizures go away. I also pray your fiance' continues to be supportive and caring. I pray strenght for both of you and a permanent cure for all who suffer with E. Hugs
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I don't want to seem rude, but as huskymom said - it might not be worth keeping him around.
I've been with my husband for a total of 8 years now. I know it was hard on him at first because there was nothing he could do to help me. I've tried several different meds and dosages but nothing works. He's accepted this now and knows that the only way to help me is just to be there for me and love me.
I've been with my husband for a total of 8 years now. I know it was hard on him at first because there was nothing he could do to help me. I've tried several different meds and dosages but nothing works. He's accepted this now and knows that the only way to help me is just to be there for me and love me.
alivenwell
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Here's another perspective: What if he received a chronic condition and needed Your help?
A lot of medications are hard on the liver because they are taken orally. I really wish they could come up with a much better method of controlling seizures without toxins.
Dilantin has been one of the oldest medications for epilepsy. It also causes osteoporosis as well as a few other nasty side 'benefits'.
A new medication may be very helpful, especially in light of the toxic effects of the Dilantin and the fact that it no longer prevents seizures.
Personally, I'd get a pet. They are devoted, love you and will offer a therapeutic benefit of feeling needed.
A lot of medications are hard on the liver because they are taken orally. I really wish they could come up with a much better method of controlling seizures without toxins.
Dilantin has been one of the oldest medications for epilepsy. It also causes osteoporosis as well as a few other nasty side 'benefits'.
A new medication may be very helpful, especially in light of the toxic effects of the Dilantin and the fact that it no longer prevents seizures.
Personally, I'd get a pet. They are devoted, love you and will offer a therapeutic benefit of feeling needed.
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alivenwell, I thank you for two reasons:
your point on him needing help if he was in similar shoes one day; my partner is not there for me emotionally through this much and I've made your exact point to him many times, and also your comment about the pet. Bit of a chuckle there, and it was a good idea for the post too.
your point on him needing help if he was in similar shoes one day; my partner is not there for me emotionally through this much and I've made your exact point to him many times, and also your comment about the pet. Bit of a chuckle there, and it was a good idea for the post too.