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Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Rocking4Epilepsy

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Hi
Wanted to say great site so far. I own 4 myself but, I can't resist in joining a new one.
My name is Jen we lost our 3 year old son to epilepsy on 12-26-01 you may read his story on our web site in my profile.

we now own a non profit organization for epilepsy awareness.
we live in Iowa

If you have any questions please feel free to ask I will reply
 
Hi Jen, welcome to our forum. I'm sorry to hear about your loss. I'll take a look at your site.

Feel free to post a link to your sites as appropriate. It's good to make this information visible.
 
Inspiration

I'm getting tired for the night and I think I'm getting ready to hit the sack. I'm sorry to hear about Daniel and if there's anythning I can do, just let me know.

Also, Bern was driving me to a Dr.'s appointment today and we passed, "The Golf Store". I was inspired, because the guy that was walking out of the store had one arm. I thought, "Man, it has GOT to be tough to play golf with one arm." I've been in a great mood ever since. I'll talk more tomorrow.

Love, Stace
 
We have a guy that used to have epilepsy as a child (he helps us with our walks for epilepsy)he has one arm and plays golf, softball.
he lets nothing hold him back
 
That is so cool! I hope I will be just as much of an inspiration to people.

Love, Stace
 
((((((((((( JEN ))))))))))))))

Long time no see!

:rose: :rose: :rose:
 
Hi Jen!! :)

It is good to see you here. I only recently joined this group and it is a good one. Welcome

Kerin
 
Hi Jen - so sorry to hear about your loss.

Stacy, that is a great image you painted in my mind. I remember a lady in NoCA that hand no arms. She wore neat dresses with her purse slung across her chest. She brought her leg up to the counter at a retail establishment to write out a check with her toes. It was the most graceful movement and one that I will never forget.
 
Rocking4Epilepsy said:
Hi
Wanted to say great site so far. I own 4 myself but, I can't resist in joining a new one.
My name is Jen we lost our 3 year old son to epilepsy on 12-26-01 you may read his story on our web site in my profile.

we now own a non profit organization for epilepsy awareness.
we live in Iowa

If you have any questions please feel free to ask I will reply
Click to expand...
how did u get started I would like to get one started myself
 
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